Dear Susan as I read your comments concerning the things/ ailments that you are dealing with my heart really felt your emotional and mental pain…I too have lymphedema in my left leg, which if not managed properly can swell the affected limb or body part to ultra extreme proportions because of the excessive lymphatic fluid that has accumalated…I have perioral dermatitis, which is a terrible skin condition that is very difficult to treat. This life-changing skin disease has caused much isolation on my part when it comes to outsisde activities and contact with others. Every thing I eat or drink seems to make it worse. Flouride which is in just about everything that a person eats or drinks triggers bad outbreaks of my PD with a vengence. I have TMAU which very few people and doctors know about. I am gonna try and start a discussion about TMAU as well as Perioral dermatitis to find how others in a literal and practical way are coping with these three horrific ailments. TMAU is the most devasting of the three things I’m dealing with beacuse your hygiene is always called into question…even as I type this it is to painful and embarrassing to give details about it. I will say this much that TMAU is caused by a mutation in the FMO3 gene, and is inherited in an autosomal recessive pattern. I really dont know what all this means, all I know is all three of these things can put your life on hold if you allow them to. All three of these ailments can cause continuous deep depression, anxiety, stress and worry.
Susan I use to angry about these terrible conditions that has wreaked havoc and ridicule in my life. But now Im coping successfully with all three. It is only and I mean ONLY by means of my close relationship with GOD in my life that has carried me through the stares and degrogatory or unkind gestures that often come from others when im in their presence. I’ve learn to see these ones as persons lacking knowledge and understanding of a situation. I see that these ones lack compassion for the lowly one or underdog if you will…then Jehovah helps me to see that if these ones had heartfelt knowledge of my condition, if they had real heartfelt compassion and understanding then they would reach out and show personal interest in others.