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Sat, Feb 22 12:18pm · Looking for People Diagnosed w/Autoimmune Autonomic Ganglionopathy in Autoimmune Diseases

Hi,
I don’t have the same Autoimmune disease as you, but I have Lupus and Rheumatoid Autoimmune Disease. I have been having the Rituxin infusion for about five years. My Lupus is now in remission and my inflammation numbers are down. The thing about Rituxan is It is cumulative meaning it does not necessarily work after the first infusion. You get the infusions every 6 months. It took a couple of years before I really felt the difference in my body. Now when I get the infusion I can feel the positive effects within a couple of weeks. It is as though a vail is lifted off of me. It brings me quality of life.
I hope it works for you. 💓

Dec 22, 2019 · Do CBD products cause positive drug tests? in Chronic Pain

CBD does not have THC which is the active ingredient in marijuana. You do not have to worry about it showing in your blood tests.

Dec 18, 2019 · CLIPPERS:Looking to connect with others in Autoimmune Diseases

Hi, I have been on Rituximab for about five years. It has basically been a life saver for me. My Lupus has gone into remission thanks to the Rituximab. About two weeks after I get the infusion it is like a veil has been lifted off my body. I sure hope it works for you!

Dec 16, 2019 · New reality with four autoimmune diseases in Autoimmune Diseases

Hi, so sorry you are going through this. It is very common to have more than one autoimmune disease. I have three myself.i hope you have seen a rheumatologist and that is who made your diagnosis. You are in for a long road ahead, but I am living proof you can learn to modify your life accordingly. I was once bed ridden, but now I am up and around. The important thing to remember is to take good care of yourself, listen to your body and above all…DO NOT FEEL GUILTY. This is not your fault. I wish you well!

Dec 13, 2019 · Referral to Mayo declined for Autoimmune or Unknown Condition in Autoimmune Diseases

Hi, I am so sorry you are going through so much. What you describe is almost exactly what I have been through. It took a long time to get diagnosed. It started with Fibromyalgia then Rheumatoid Autoimmune Disease then Lupus. My RAD is systemic which basically means it is attacking my organs along with the Lupus. Once I went to a Rheumatologist and was diagnosed my life has gotten better. It has taken many years, but now I can go out to lunch or dinner and enjoy it. I spend a lot of time with my grandchildren. I even went on a field trip with one of my granddaughters. I will be honest, it was a push and I hurt like crazy afterwards. I was in bed for the next two days, but I did it! You need to be an advocate for yourself. I wish you well….

Nov 16, 2019 · Can Joy and Grief Live Together? in Loss & Grief

Please don’t feel like you need to move on. You need to experience the grief as hard as that may be. For me it is like waves in the ocean. Sometimes they are mild and I just float with them. Other times the waves are so big I give into them and try to stay afloat. November 26 th will be seven years since my husband passed. Unfortunately, it was a violent and unexpected death. My ptsd comes raging up every November. It is so so hard, but I try to go with it and wait for the waves to subside. Please know you are not alone…….

Nov 1, 2019 · Calcium and Vitamin D for bone density in Bones, Joints & Muscles

Hi, I have fibromyalgia and get horrible burning in my legs. The only thing that has helped is Gabapentin which a dr needs to prescribe. Hope this helps.

Oct 27, 2019 · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

Becky, I think I was on Rituxan for a couple of years before being able to taper down. Yes, I was a bit scared too, but I am really glad I was able to do it. Everybody is different so just listen to your body. Best of luck on your MRI.