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Posts (6)

Oct 16, 2012 · Oh my, I understand that lonely feeling when no one gets what in Just Want to Talk

You need to ask for a simple Blood test for Ebstien Barr Virus…..that is confirmation of Chronic fatigue, It saps all of your energy and will usaully stay present in your system even if it is in a remission stage. They cannot DO anything for it, but….you sure do deseve the common curtesy of having it verified. Take B12, it helps a weee bit, but not much. Everything seems too be interconnected and it is a constant cycle of one thing or anouther….god forbid the days of everything at once. I am happy to meet you Sarah… : ) I love your smile and I am sure you take any good day and get the most out of it, even if you have to pay for the next days…lol. I know I do! I decided to try this site cause I have no one else that knows how it feels…..my name is Cheryl, Hello Sarah!

Oct 14, 2012 · Fibromyasia in Just Want to Talk

It is really hard to handle the pain some times..but, worse when know one knows what you go thru. Do you have support?

Oct 14, 2012 · Fibromyasia in Just Want to Talk

You need to ask your doc to run a simple Blood Test for the EBV Virus…it’s like severe Momno (CFS…or Chronic Fatigue Syndrom) and goes hand in hand with FMS. Any Changes in weather or routines will flair up FMS..and most drugs have an Adverse Effect, so your hubby was right about not wanting you on just any med the give you. Thay still do not know the why and the how to fix….so we are test subjects. I use a heat pad under my shoulders every nite. During the day I use lots of either menthol rubs “OR” opt for Thermal Care Heat pads as they worrk for up to10 hours. I put the neck ones….One across each shoulder next to both sides of the neck and the I take the x=large back one and put it just under the other two to get the knots under the shoulder blades. I then wrap it around my chest and hook it in front witha soft bra holding all in place. My hubby helps me put them on as I cannot reach back there..It is the best long lasting relief I get without any meds. Do not use with rubs…it will burn your skin, but…you can wear them out under your clothes, or to bed for a good nites rest…the effects last untill your muscles bunch up again.

Oct 14, 2012 · Fibromyasia in Just Want to Talk

FMS, CMS, IBS, AXIETY DISORDER, DEPRESSION,HIVES ans SEISURES. Sensitivity to light, noise, smells, soaps, plants and meds. It began with the Ebstein Barr Virus….

Oct 12, 2012 · Fibromyasia in Just Want to Talk

I don’t know if you are still there…your posts are 8 months old, but I am new to this site and wanted you to know that there is someone else here. I do not have anyone to talk to who can relate to me and I am currently in a state of mental exhaustion. I have played musical docs and meds for 21 years….and now am diagnosed SSI as of 2003. The good news is that no one can play musical meds, the bad news is…no-one can help me or wants to deal with me cause I cannot be curred. I am in the empty space between sick, but untreatable.It’s a lonely feeling…let me know if you are still there…K!