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Posts (10)

Apr 14, 2017 · Trying to stay upbeat. in Brain & Nervous System

I’ve had chemotherapy induced neuropathy since the 2nd treatment of Taxol in 2006. It has steadily worsened within the last 2 years including toes to groin and fingers. (ps you don’t walk or balance well if you can’t feel your feet). I finally got through my emotional angst and brought home a 4 wheel rollator with seat this week. It was expensive and not covered by insurance, but I think well worth it to be able to go places again, stand in grocery and other lines. I have brief periods of vertigo, but with the rollator, I can turn around and sit on the seat until it passes. Good luck .

Apr 11, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

A joint study by the University of MN (USA) and Realife (Brooklyn Park, MN) was published in a peer reviewed journal a couple of months ago which indicates Laser IV had a positive effect on a large percent of the participants. I believe it was a 3 year study. The bad parts are that the treatments are currently not paid for by insurance, there are only a few locations that use the Laser IV, and the treatment is still a long way off from being accepted as a protocol. I suspect it will need to go through the Level I, II, and III clinical trials before then.
Of course, funding for these trials will probably be problematic as it is not a drug and the pharmacy industry has the deep pockets to fund clinical trials.

I have a reprint of the study (which of course is pretty technical), and I will seek approval to scan and post it on this and other peripheral neuropathy sites.

Apr 11, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I also have chemo induced peripheral neuropathy (as well as autonomic neuropathy) which has worsened since 2006 . After 15 Laser and soft tissue treatment this past fall, I regained some feeling in my feet and big improvement in my legs and some in my fingers. I consider myself one of the very lucky ones because so far I’ve only had a couple of extreme pain episodes.
I have participated in Physical Therapy since completing the laser treatments to work on balance and strength. Even though I have improved in those areas my dynamic balance is still poor, so I’m purchasing a rollator with a seat today to improve my mobility and let me get out of the house and take part in some activities … like walking safely. Although I can walk very short distances unaided, and quite a bit longer with my walking stick or Nordic Pole trekking sticks, when I tire, neither are enough to keep me from falling —- thus the seat on the rollator.

Apr 10, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

hope to get a rollator with a seat this week so that I can walk much more safely

Apr 10, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I spent $3500 at Realief In Brooklyn Park, MN last summer. I have feeling in my thighs and legs now, and some i my feet. Yes. it is expensive for the treatment and maintenance, but I was falling 6 to 7 times a week on a regular basis and at 68 years old I felt there would come a time where I wouldn’t bounce so well. The debilitation from breaking a hip, for example, would cost me a lot more than a lifetime of Realief. Giving it a try was certainly worth it for me. As the saying goes “I ain’t well, but I sure am better.”

Apr 10, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I also have autonomic/peripheral neuropathy caused by chemotherapy in 2006. It has progressively gotten worse during the last 3 years. So far lucky that I have the numbness and not the shooting pains. However, when you can’t feel your feet, it’s difficult to walk without falling frequently. I have PN in the first joint of my fingers, but can still do buttons, zippers, etc. If/When I can’t do those things, I will be researching the adaptive devices that will allow me to be continue to be as independent as possible. Best of Luck .. ps I will be 69 this month. I also have other health issues and agree that we will be dealing with some level of impairment going forward

Apr 10, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Best of luck with your chemo. Hope it doesn’t include taxol or taxotere as there seems to be a strong link between that family of chemo drugs and peripheral neuropathy

Apr 10, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thank you for the information.