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Posts (4)

Aug 24, 2012 · Crohn's Disease in Digestive Health

Join a Crohs support group! It will help you learn about our disease and you will meet others with the same condition and that will help you stay positive. Thats my best advice to you……. I had ulcerative colitis and went trouhgt some bad times…doing better now…..good luck…….

Aug 24, 2012 · Scar tissue surrounding organs in Digestive Health

Forgot to ask . How did they determine that she had all that scar tissue?

Aug 24, 2012 · Scar tissue surrounding organs in Digestive Health

I just got out of the hospital a few days ago. I went in with a small vowel partial obstruction. I had major surgery 6 y ago to remove colon(ulceratice colitis) and I now have what is called a j-pouch(internal pouch) in place of the colon. Ever since my surgey I end up in the emergency room once or twice a year with these obstructions. Some are worse than others but so far I have avoided surgery. I been told this could be due to scar tissue interfering with the intestine. A surgeon at the hospital told me that he might be able to do something about this to try and help by going in and cutting some of that scar tissue. He would do the surgery trought two small incisions on the sides. I am thinking about getting this surgery done in the next six months to see if it will help. No guarantees and any surgery will create more scar tissue ,so is a catch 22 !! but it might make things a bit better. The previous obstruction happened just 5 months ago ! so I will give this a try and see if it helps. I will consult with 2 or 3 surgeons before I do it to make sure I get the best advice possible. I also would like to hear from anyone that has had surgery to remove scar tissue. Thanks to anyone that responds, it would be very much appreciated…..

Aug 24, 2012 · Daughter with Crohn's in Digestive Health

I was giving Remicade(ulceratice coiltis) once and it helped for 1 week!!!! You did the right thing, in my case it was as a last resort . After that I had surgery to remove colon. I tried many diferent drugs before remicade. You did the right thing!
EDUCATING YOUR SELF ON THE MANY DRUGS ETC ETC IS VERY IMPORTANT
Dont give up to easy, you might find a drug combo that will put it in remmision.
In my case I went in remission for 10 years. Once it came back I could not get it under control. I made the mistake of stopping the drugs I was taking because I was doing so good! BIG MISTAKE…………