Thanks for your response Kristin. I have no health insurance – waiting on the AHC Act to buy some going forward in January. However, my Medicare kicks in 2.5 years from the original date of disability (as determined by SSDI), so I will have Medicare and a supplemental coverage if I live to August, 2014. (I haven’t flown since my heart attacks, but feel comfortable driving to Rochester in 4-5 hour blocks.)
I can call the Transplant Center, but want to make sure I don’t need to wait till I have insurance coverage. My medical records are about 4″ thick… from neurosurgery at Stanford Stroke Center in 1992 all the way up to the AICD placement in 2012.
Of interest, my attending cardiologist at Austin Heart Hospital told me this: “If you make it to age 63, we’ll talk transplant. But we don’t do whiners!!” More recently (July 2013) my follow-up cardiologist told me to be considered for transplant I would have to be lying in a hospital bed. True at Mayo? Because although I get up and move around my house cooking, cleaning, doing laundry, I feel hopeless for my future. I take care of my daughter’s mobile dog grooming business affairs and make all her appointments – so I am not completely dysfunction and do have some relevance to my life. However, I want to do so much more but don’t want to have false hope.
If you still think a call is advisable, I will definitely make the call. Just want you to have as much info as possible.