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Posts (3)

Jul 27, 2012 · Daughter with Crohn's in Digestive Health

You didn’t mention how she was diagnosed, that would help.

I have lived with crohn’s for the past 28 years. When I was diagnosed, I did a lot of digging to learn about it, and to learn about the medications and their side effects. I found that the Crohn’s & Colitis foundation is a great resource. I would suggest you check that out. Your daughter can live a full life, and doesn’t have to hindered greatly by the crohn’s. You don’t know how the crohn’s will effect her in the future, and I assure you that the doctors can’t predict that, either. It may go into remission for long period. Take things one day at a time, be patient and she will learn how to recognize problems. It effects people differently.
My brother and I, were both the same age when we were diagnosed, we’ve both had 3 surgeries (almost identical). However, I also have a sister and a niece who were diagnosed with crohn’s, but their’s are mild, never had surgery. Her daughter was 14 or 15, I believe, when she was diagnosed. She is doing well and seems happy, but she has 2 uncles that have moderate to severe Crohn’s and I suppose she feels very lucky that she hasn’t had to have any surgery.
And as for the Crohn’s Cookbook, well, people have different tolerances. For instance, I can eat jalapeno peppers (in moderation, of course), but some people can’t. Some may be able to tolerate eating an orange or an apple, not me. It is kind trial and error. Generally, raw fruits and vegetables are out. high fiber is out, nuts of any kind, and try to avoid fried foods. Smaller, more frequent meals would alleviate big worries on types of food, too.

Jul 27, 2012 · What could nausea bloating discomfort in upper abdominal be?!?! in About Kids & Teens

Well, I am no doctor, but being a person who was been diagnosed with crohn’s disease about 28 yrs ago. Those symptoms would lead me directly to the ER. No use in even trying urgent care, they turn away anything associated with the abdomen. The ER can evaluate the situation faster than a visit to your doctor who would probably send you to the ER anyway.

Lots of luck, and hope you feel better soon.

Jul 27, 2012 · I am 49 years old, and was diagnosed with moderate to severe in Just Want to Talk

I am 49 years old, and was diagnosed with moderate to severe Crohn’s disease when I was 21. From my first surgery in 1984 until 2005, things went fairly well, then my world was turned upside down, bowel obstruction after bowel obstruction, in and out of the ER, hospitalized every few weeks. Mid 2005, they did surgery to remove more small bowel. The obstructions still continued, same scenerio. Then, in Dec. 2005, another surgery for more bowel removal. After that, I was put on Remicaid, and azathioprine. The complete bowel obstructions have stopped, had a few partial, but for the most part things had been going well with the new treatment.

Now, because of the surgeries, there are adhesions (which get worse after each surgery). I have been experiencing lots of abdominal pain, been though the wringer with all the tests. No active crohn’s, and no clear explanation for the pain other than adhesions. The continues to get more frequent, it is getting more and more difficult to enjoy life in general. I am trying to find a surgeon who would be willing to do surgery to clear the adhesions, but I am told that with crohn’s disease no general surgeon wants to do surgery just for adhesions. I would have to deal with the pain. There has to be a solution, just because we have crohn’s, shouldn’t mean we have to live life in constant pain if there is a means to alleviate it.