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Posts (7)

Oct 11, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I would hesitate to give much “feedback” because your husband’s health is complex and so treating MAC will necessarily be the purview of the doctor who will have to decide if his liver can withstand the drugs that are needed to treat the MAC. They do check for liver enzymes when a person is on drugs that are generally used with this diagnosis. It is so difficult when at an older age one gets multiple diagnoses and treating everything is difficult. I wish you the best.
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Jul 3, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I went on-line to try to find the action of the Calcium D Glucarate, but it mainly said that it might be used in cancer. But I still have no idea how it helped me get through the devastating blow of all the antibiotics. After 15 months on three meds, I have not had a recurrence and not one episode of bronchitis. Perhaps I am just lucky, but I was never as bad as some have described in the posts on this site, so hopefully it is gone.

Jill

Jul 2, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I took three drugs every day for 15 months and in the beginning I felt like you do. But I was able to adjust somehow and got over the initial malaise and depressed appetite. The only thing I took other than my usual vitamins was Calcium D Glucarate. A friend suggested it. I am not sure of the action, but I thought it made the difference and allowed me to turn the tide. You could check it out with your doctor, but I don’t think there is anything harmful. I would be interested in anyone else trying this to see if it helped.
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May 28, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Definitely not the herbal route only. It sounds like you were very advanced by the time they figured out what was wrong. I think it is hard to cure MAI and many people probably do not stick with it long enough to be cured. The herbal remedy might make you feel better but it won’t cure the condition. Let your mom-in law help and tell her how grateful you are. Hopefully, in a few weeks you will feel better.

May 27, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Well, I do know what I felt like and it was pretty awful but I think not as bad as chemo. I would go back to bed at 11 am as I just did not feel like getting off the couch. But I think as time goes by the body adjusts somewhat. Hope the calcium D Glucarate works.

May 27, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I took Calcium D Glucarate once a day. I do not know why it worked but it did. It was not recommended by a doctor but a friend who follows alternative medicine. I was successfully on 3 drugs for 16 months. I did lose about 10 lbs but my appetite improved and I started to feel better after taking the above mentioned calcium D Glucarate which I bought at a local health food store. It is worth a try as I too felt terrible during the first month.

Jul 17, 2012 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi. I had difficulty getting to this discussion as MAC was not on the list of things. I am on a three drug regimen 3 times a week to start. The day after i take the drugs, I have tremendous fatigue and do not feel like doing anything – at least until later in the day. I don’t see anything on line that would help me know what to do about this except suffer! They all tell you about side effects, but nothing about what to do to counteract them. I take probiotics twice a day, but also do not have much appetite.
I know it could be worse, but I need to get at least a little more energy.