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Posts (6)

May 5, 2016 · triple negative breast cancer in Breast Cancer

 Late side effects I have experienced include lymphedema after 16 nodes were removed (only 1was positive).  It was initially something that I didn’t have, but about 3 yrs. posttreatment it gradually developed. I continue to need on and off p.t., wear a sleeve/gauntlet,and now have a pump.  All of these things help. I also had a specialist test me for anew surgical technique to repair lymph flow.  I was not a candidate for that, at least notin the least invasive manner.  I do hope someday there is a “cure” for this condition.Good luck to all the Triple Negatives out there.  Keep fighting the good fight.Cosette

Apr 24, 2016 · triple negative breast cancer in Breast Cancer

Grannyk,I would be very happy to talk to you about Triple Negative BC. Best wishes Madeleine Cosette

Jul 7, 2012 · Chemical burns in the mouth from chemo in Cancer

thanks for all the tips in dealing with this ongoing sores/burning/and dry mouth do to cancer treatments. Frozen items like the yogurt, popsicles, and other cold foods does feel better. Just had another dentist visit and 2 more cavities (all told that’s
15 cavities since the beginning of cancer treatment until now —-this is more than I think I ever had in my entire life!) Fortunately, I didn’t loose any of my teeth, something that my dentist didn’t guarantee in the beginning of the restoration process. That was a very, very “down” time—you think you have “survived” the
surgery, chemo, radiation, & clinical trial then you hear your teeth are all
full of cavities. But, it can be worse, much worse, so I am not going to complain.
I’m going to ask my pc doc for the xylocaine swish, honey I can get in the grocery and the aloe and the baking soda. So glad to have this helpful information.
Thanks

Jun 27, 2012 · Chemical burns in the mouth from chemo in Cancer

Hi,
I had burns, dry mouth, and sores from chemo and radition. Used Nystatin,
Biotene mouth wash (and Biotene tooth paste). All helped. The dry mouth is still
there, but burns and sores are gone. However, I still cannot use a regular toothpaste or mouthwash as hese will burn my mouth. So it’s Biotene, etc. forever, probably.

Jun 27, 2012 · triple negative breast cancer in Breast Cancer

Hi Jackie,
I hope the knew chemo works better. Sometimes I think the docs need to
try different approaches (of which there are many it seems) and see what
works. I had some rough chemo rounds in the past two yrs. (was diagnosed
in 2010). In answer to your question… Triple Negative bc does not express the genes for estrogen receptor (ER), progesterone receptor (PR) or Her2/neu–
thus all three are negative (most bc is not like this but has positive receptors).
With TNBC, there is no Herceptin or drugs to help with recurrence and
tnbc is agressive and only 15% of bc patients are in this category (which is
composed of numerous subsets of the disease which the researchers are
just discovering). That’s about it in a nut shell.
I totally understand the staying in a motel in a strange city thought—If Mayo has a trial for me, though, I’m going to grin and go. MD Anderson was anyother possibility although there is a trial in my home state that is crawling at a snail’s pace and not accepting anyone anytime soon.
I, too, love sewing and recently took up rug hooking with wool strips to get
my mind off of all of “this” c. business.
Cosette is a French name. French is my second language, though I’ve
forgotten so much of it. Did go to Quebec a few weeks ago, and that was fun.
You are from Luxembourg, how long have you been here?
Take care, and by the way, check out Dr. Oz’s web site for anti-cancer
foods—several lists on it (5 foods that “kill c. cells” —bok choy (also broccoli,
cauliflower, B. sprouts), cooked tomatoes, strawberries, artichokes, and
flounder.
Best,
Cosette

Jun 26, 2012 · triple negative breast cancer in Breast Cancer

Hi Sewhappy,
What would you like to discuss about breast cancer? I’m triple negative,
stage 3 and want to get in a trial at the Mayo. I live in Ohio, so it’s going to
be a bit of a trip. Sewing and rug hooking are my main hobbies.
Take care and write if you like.
Best,
Cosette