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Posts (7)

Jun 9, 2012 · Familial Mediterranean Fever in Bones, Joints & Muscles

Thanks for your help! I was given prednisone once before, it did help. I will speak to my doctor about blood work and about being put back on it. Thanx again- it does help to hear from other people in my situation.

Jun 9, 2012 · Familial Mediterranean Fever in Bones, Joints & Muscles

Thank you nancy. I recently switched back to colchicine through Canada. But now they are about 2 months apart (my attacks) and lasting longer… I will check out the support groups on yahoo. Thank you

Jun 9, 2012 · Familial Mediterranean Fever in Bones, Joints & Muscles

Thank you so much for sharing! It’s been very hard for me lately. I feel like I have been getting low grade attacks often and they last for almost a week. Stress definitely does bring on attacks, I try very hard to control it but it becomes overwhelming at times. I get horrible stomach aches as well and I have no appetite. I will also do more research as well. I take colchicine .6 mg twice a day but I think I need to up my dosage to three times a day and see if that helps.

Jun 6, 2012 · Chronic pain and allergic to standard drugs in Chronic Pain

Absolutely! I think you should definitely get a second opinion. They prob haven’t tried hard enough to find results for you

Jun 6, 2012 · Chronic pain and allergic to standard drugs in Chronic Pain

I think you should go for genetic testing…how do u get an appointment at the mayo clinic I’m trying to find an FMF specialist to help me out

Jun 5, 2012 · Chronic pain and allergic to standard drugs in Chronic Pain

Try talking to ur doctor about gabapentin it’s a nerve medication non narcotic. It’s a possibility that ur pain is stemming from some undetected nerve damage. It’ll say once u look up the drug that it’s for people who suffer from restless leg syndrome or for diabetics that have pain in their legs, but my doctor thought I should try it to help with my FMF (familial Mediterranean fever). Which is also heavily chronic pain but from my lower back/abdominals down to my feet. If u don’t mind- what is ur familial origin?

Jun 5, 2012 · Familial Mediterranean Fever in Bones, Joints & Muscles

Hello everyone! I am new to this and am in desperate need of assistance. Since I was 15 I’ve been suffering with lower abdominal and lower back pain that spreads down to my feet. The pain would get so severe I would end up in the hospital time and time again. They could never figure out what was wrong. In 2009 I decided I needed to go to a geneticist. He did testing according to my background and found I have a mutated gene diagnosing me with FMF (Familial Mediterranean Fever). I’ve been on colchicine (a medication known to assist in the prevention of attacks) once a day till recently when the attacks would happen more often. It was increased to twice a day. I cannot find a doctor in my area familiar with it. I need help, I have questions. Are there certain activities I should refrain from doing? Special diet I should be on? Extra vitamins I should take? Anyone out there suffering from FMF as well?