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Posts (53)

Thu, Jan 16 11:33am · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

In May of 2015 I was in a catastrophic car accident. TBI, broken neck, 6 ribs, lung injuries, multiple fractures down back and my right ankle. After months of wearing neck and back braces, many therapies, ertc. northing much got better with my post concussive persistent postural and perceptual dizziness. For five years I have been dizzy every day with periodic relief. I walk every day even though it feels like I have a bobblehead and I feel lurchy. I ride a stationary bike, do water colors, sing in choirs and play the flute and piano. Bending over to pick up something causes a rush of dizzy as does moving about too quickly. I feel an intense pressure in my head and neck when I move around using my arms and eyes. Brain scan showed no changes. Neck blood vessels appear OK.
I would love to find treatment from anywhere. I fight depression but just keep going.

Aug 11, 2019 · Pseudobulbar affect (PBA) in Brain & Nervous System

Thank you Jennifer hunter for your kind understanding words. My family is loving and gentle with their mother, along with the great and grand kids. I am grateful.

Aug 8, 2019 · Pseudobulbar affect (PBA) in Brain & Nervous System

I suffered a TBI after a catastrophic car accident. Afterward while struggling to recover I found that in heavy traffic, pounding rain , having a quick stop or close call,or coming upon an accident put me into uncontrollable sobbing or wailing. My arms often flew up too. It has been four years now since the accident but my startle response is still quite active and loud noises enrage me. I often have to go in the house and close the windows when neighbors mow their lawns.
It is all getting more normal with time but I still cry very easily with emotional situations or family tensions.

Apr 8, 2019 · Tingling/Numbness on 1 side of neck & cheek in Stroke & Cerebrovascular Diseases

@livetheday this is lakelifelady. I have had a fushion at C5&6 and in a 2015 car accident C7 broke loose from there. Another spot in my neck was fractured during the accident and I spent months in a neck brace. At first after the accident I had numbness, pain and tingling from neck, over my shoulder and down to the crook of my arm. I had a lot of PT over these years and gradually over time all improved considerably, although the neck fracture never did close properly. I also had a Traumatic Brain Injury in the accident that caused three brain bleeds with multiple issues arising from that, but I do not think that the TBI caused much tingling or pain for me.

Mar 14, 2019 · Right - Left Discrimination Problem in Brain & Nervous System

Sometimes, when in a car giving directions, I say right or left when I mean the opposite and I cannot believe that I did that. My brain knows which way is which but I see one way and say the other. I do an eye to hand exercise where I move my hand back and forth in front of my face and follow with my eyes. Or I sit in a chair and move my eyes back and forth, up and down following my hand.

Mar 12, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Exactly! That is why stores/malls are problematic ….too many things to see and too much head turning……yes that is how it is. Therapy has been helpful with head position and eye training.

Mar 11, 2019 · Idiopathic neuropathy and dizziness. in Neuropathy

Thank you John Bishop. Yes, I was an Endocrinology patient a while back at Rochester. I will pursue your links.

Mar 11, 2019 · Idiopathic neuropathy and dizziness. in Neuropathy

Seven months ago I began to feel sweaty and clammy all over my entire body, all the time. Sometimes at night when I am very still I do not feel sweaty and clammy, but it returns as soon as I begin to move around. I have had a stress heart attack and suffered a TBI in a car accident four years ago, along with fractures of neck and back and ribs. I have been dizzy ever since with sometimes experiencing a vasovagil lightheadedness with nausea.
A neurologist recommended an autonomic reflex screen, but a provider here in the Phoenix area refuses to treat people with my Humana Medicare coverage. I would like to get a Mayo apt. Either in AZ or MN where we live six months of the year. How can I go about that? By the way, your post as been the only one in all these months that led to an understanding of what might be going on with me, since nobody else can figure it out after many labs and appointments.