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Posts (50)

Mon, Apr 8 2:18pm · Tingling/Numbness on 1 side of neck & cheek in Stroke & Cerebrovascular Diseases

@livetheday this is lakelifelady. I have had a fushion at C5&6 and in a 2015 car accident C7 broke loose from there. Another spot in my neck was fractured during the accident and I spent months in a neck brace. At first after the accident I had numbness, pain and tingling from neck, over my shoulder and down to the crook of my arm. I had a lot of PT over these years and gradually over time all improved considerably, although the neck fracture never did close properly. I also had a Traumatic Brain Injury in the accident that caused three brain bleeds with multiple issues arising from that, but I do not think that the TBI caused much tingling or pain for me.

Thu, Mar 14 10:20am · Right - Left Discrimination Problem in Brain & Nervous System

Sometimes, when in a car giving directions, I say right or left when I mean the opposite and I cannot believe that I did that. My brain knows which way is which but I see one way and say the other. I do an eye to hand exercise where I move my hand back and forth in front of my face and follow with my eyes. Or I sit in a chair and move my eyes back and forth, up and down following my hand.

Tue, Mar 12 9:39am · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Exactly! That is why stores/malls are problematic ….too many things to see and too much head turning……yes that is how it is. Therapy has been helpful with head position and eye training.

Mon, Mar 11 1:35pm · Idiopathic neuropathy and dizziness. in Neuropathy

Thank you John Bishop. Yes, I was an Endocrinology patient a while back at Rochester. I will pursue your links.

Mon, Mar 11 10:57am · Idiopathic neuropathy and dizziness. in Neuropathy

Seven months ago I began to feel sweaty and clammy all over my entire body, all the time. Sometimes at night when I am very still I do not feel sweaty and clammy, but it returns as soon as I begin to move around. I have had a stress heart attack and suffered a TBI in a car accident four years ago, along with fractures of neck and back and ribs. I have been dizzy ever since with sometimes experiencing a vasovagil lightheadedness with nausea.
A neurologist recommended an autonomic reflex screen, but a provider here in the Phoenix area refuses to treat people with my Humana Medicare coverage. I would like to get a Mayo apt. Either in AZ or MN where we live six months of the year. How can I go about that? By the way, your post as been the only one in all these months that led to an understanding of what might be going on with me, since nobody else can figure it out after many labs and appointments.

Sat, Mar 9 5:10pm · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

So many times since my TBI I have had to leave a store, a social gathering or other public places because I cannot tolerate the noise,the stimuli, the constant changing activity, the lights or too many people talking at once. In a smaller group if a couple of conversations are going on at once I feel like shaking and am too distracted often to follow either group. Then I get angry, really angry…….which others do not deserve, so I don't take it out on them, but sometimes my husband gets it.

Mon, Mar 4 9:52am · After her Stroke my mom does not want to eat pushes her food way. in Stroke & Cerebrovascular Diseases

After my accident I lost ten pounds and was very thin. My mouth was so dry that food had no taste and Food had an unpleasant taste. I drank Ensure for some time in addition to eating as much healthy food as would go down. Plus, I had a neck brace that pushed my head up a bit so I had to use a mirror in front of my face to see where my mouth was to put food in, which would often spill on my neck collar. It was miserable but I got through it.
Maybe your mom would drink Ensure or smoothies. Be sure she takes a multivitamin in some form. There is a special toothpaste called Biotine and there are lozenges, mouth washes or sugarless gums that help with dry mouth…..that is if she is able to take those products.

Thu, Feb 28 1:32pm · cerebral stroke. in Stroke & Cerebrovascular Diseases

During a car accident nearly four years ago, I suffered two brain bleeds and now have a focus of encephalopothy in my frontal lobe. Since then I have been dizzy some or all of every single day. Message, vestibular exercises, Tai Chi, reading books not newspapers or tablets because with books one's head stays stable, doing music and painting and socializing on a small scale have all helped me.
Your husband having dementia definitely complicates things, but music and slow movement exercise like Tai Chi would help, I believe. Eye movement training from a Physical Therapist may help also. Lorazepam in small doses has helped me maintain, although it is an addictive substance and use of the drug needs to be monitored. My hope for you and your husband is to take small steps each day toward healing. Good luck.