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Posts (36)

Thu, Jan 10 3:06pm · Anyone Else With PTSD? in Mental Health

@cambriaclover, maybe the worst of PTSD is the ever present low level of anxiety and depression, sometimes peaking in a screaming and crying "spell" brought on by an unexpected close call. Loud noises bring on exaggerated startle responses of fluttery hands and rapid breathing. Guess there is not a worse response just different ones to various circumstances. Expect the unexpected.

Mon, Jan 7 10:09am · 24/7 Dizziness Occipital Stroke and Cerebellar Stroke in Stroke & Cerebrovascular Diseases

Lorazepam has a positive effect on taking the edge off dizziness. Without it I am very full headed with lots of tinnitus and dizziness. After all this time I am no doubt addicted to it but do not increase my dosage which is only .5 MG Tab, which I halve for am and pm. Thank you for the link.

Mon, Jan 7 7:47am · 24/7 Dizziness Occipital Stroke and Cerebellar Stroke in Stroke & Cerebrovascular Diseases

It was three years last May for me, so I am going on four and have no relief. Some of it is my meds but dizzy is always there, driving, in bright lights, in stores, in noisy places, etc. at first a scapolamine patch behind an ear helped a lot but I became allergic to the adhesive and could not continue with them. It was murderous at first without it……some how I got through it and now Lorazepam at a small dose every day seems to somehow relax my tight neck muscles……

Sun, Jan 6 11:08am · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Hammondm99, exactly the same for me! Nearly every word! And I also find that when I am ina difficult way…family and friends may scoff and belittle my mentioning a TBI, because, you know I look so good and it couldn't possibly be that hard………they do not have a clue what it is like to be dizzy, lightheaded and unfocused and lurchy every single day for most or all of that day no matter what I am doing. Or how tiring the effort to continually cover it up is……..or how sick I get in every single store, or event all the time. Sometimes buying our groceries is such an effort that I feel like I will not make it the ten miles home to the lake. But you understand and the others here understand and our mentors get it …….that helps immeasureably. Thank you all for being here.

Dec 31, 2018 · Mild traumatic brain injury in Brain & Nervous System

I suffered a TBI in a car accident three and a half years ago. Every day since then I have spent some of the day or all of the day being dizzy. Bright lights, noise, many people speaking at once, too much visual or auditory stimulation such as in a Mall ( cannot go to Malls anymore without getting sick), unfamiliar grocery stores….and a lot more……gives me the feeling of having my head swell up, my ears get plugged with tinnitus, it is hard to focus my eyes, and I need to get away alone in a controlled space of quiet and calm. I am not antisocial ….just cannot handle a lot of people at once.
Riding ina car makes me car sick and extremely anxious with exaggerated startle responses. A close call will send me into a screaming panic for just a bit.
So how do I cope? Read…a book not a tablet …lights and movement of electronics worsens symptoms. I read music by playing flute and piano and I sing in choirs. I paint, I play Bananagram….a game like Scrabble to help with finding the right words. Yes, trouble finishing a thought happens and words fly away…..I just stop and go slower. Organizational skills are very difficult to come by for me. Forgetting is big so write it all down. I talk out loud to myself when trying to complete a task. Keeps the focus.
I exercise every day even though I feel lurchy and nauseous often. If I can do just a little one day, that is what I do. I fix nutritious meals and drink a bit of wine at dinner, but do not party. Parties are very difficult and I can only take just so much talking and laughing.
Well that is a lot to read for now. Good luck……just keep on plodding. You are not alone.

Nov 29, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Yes, I have had a metabolic work up, have seen a Nephrologist, have seen my Endocrinologist, yet symptoms persist and they are new to me, never having experienced such before. Sodium levels are always low and my kidneys abnormally hold water. Lowering fluid levels and increasing salt in diet are two strategies suggested as well as a trial in Clodinine and doing a hormonal lab. I have had a heart attack and a TBI from a car accident and an oblated thyroid gland. I am of normal height and weight. The symptom checker does not seem to fit for me.

Nov 29, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Wondering if a feeling of being sweaty, clammy and damp all the time even though my clothes and skin feels dry is a neural phenomenon.

Nov 8, 2018 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

It is very difficult for me to visit a big mall. I can barely make it through without feeling dizzy, getting tinnitus, feeling like my head is twice as big, vision difficulties, etc.Even in smaller grocery stores, although if I get to know a store with all of its attributes I can handle it much better. Social events with a lot going on, many people talking at once makes me dizzy and all of the above. I often feel lurchy and off balance and feel sickly in stores, church, other buildings. It has been three and a half years since the accident and the TBI and it all still is with me.