About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (3)

Apr 21, 2012 · I was just diagnosed with mixed connective tissue disease, and have not in Just Want to Talk

I was just diagnosed with mixed connective tissue disease, and have not been given any prescriptions yet. This is my first communication with Mayo. It would be great to hear about first experiences with this illness. I’m not sure what to expect.

Apr 20, 2012 · MCTD (Mixed Connective Tissue Disease) in Autoimmune Diseases

I was recently diagnosed with MCTD, Fibromyalgia, Post Traumatic Stress Disorder. and Major Depression, and am unemployed, and separated from spouse of 18 yrs. (He lacks empathy and is verbally abusive; my pain seemed to triple) I’m treated with Cymbalta and Lidoderm patches. My rheumy is testing for Celiac Disease & told me to use ice for my nerve pain. I think I had two mini strokes at my former place of work. All of my muscles and joints ache and I do not function. My legs swell and I have petechiae. My eyes itch like crazy and nothing I eat seems to agree with me.My glands are swollen and I’m super tired. I wake up with migraines for multiple days in a row, and have done this for weeks. Also, I am having cognitive problems.I have a few recent events that I have absolutely no memory of. It is difficult to concentrate and problem solve. I’m very accident prone. I backed into someone’s car, had massive diarrhea in the men’s room at Walmart, and asked my neighbor to open a can of soup because I broke my can opener, and the other two can openers I brought to replace the original. Suddenly I did not know how to use a can opener! My left rib hurts, and my whole body has been itching without a rash for over a year. I have been short of breath, and in hindsight have figured out that I was misdiagnosed with asthma years ago. My hands swell with my legs. I’m 41 and my menstrual cycle stopped almost a year ago. My rheumy said my liver is inflamed. I have earaches and hear my pulse when I lay down. When I sweep my tiny doorstep, my biceps kill me. Right now my shoulder is killing me and all I have is Aleve and Lidoderm patch. It still hurts.
When I used to work it hurt to move the mouse, and one day I did not think I was going to make it way down to the toilet! I loose my balance, have heartburn everyday, and urinate frequently. Thankfully my doctor has given me something to help me sleep. However, I do not understand why my rheumy has not given me more medicine or helped with the pain. I’ve only been 3 times. Next visit I’ll take some brownies and beg. God bless each and every one of you as you mange day to day. Thanks for sharing your information and stories.

Apr 19, 2012 · "How many people have autoimmune diseases or even know what they are? in Autoimmune Diseases

Hi Kim,
I’m sorry you are suffering with Pulmonary Fibrosis.
I just got diagnosed with MCTD, and in the past was misdiagnosed with asthma. (Was taking immunotherapy and subsequently had pulmonary complications and took Prednisone.)
I had a mini stroke at work I think. Please tell me more about your experiences with this illness, and how your appt. at Mayo went.
Camille