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Posts (36)

Fri, Apr 12 12:14pm · Oral lichen Planus in Autoimmune Diseases

I was diagnosed with lichen planus many years ago. I was given Fluocinonide gel USP, 0.05%. I works overnight like a charm. I will not go anywhere for too long without taking it with me. It was found that I bite the inside of my check at times especially if I chew gum. I no longer chew gum. As we age, our muscles begin to sag (yes even in our face), and as a result we have to pay attention to our back teeth wearing and getting sharper around the edges. The dentist can round the sharp edges off. I know just how painful it is when we get the open sores in our mouth. As an FYI, should you get the script for the Fluocinonide, you will read that it is for external use only. Since everything we put on externally goes into our pores and into our body, I was not worried about reading "For external Use only". I am sure the Oral Surgeon would not have prescribed it if he felt there was danger in using it in my mouth. Good luck.

Tue, Apr 2 9:04pm · New Diagnosis of Polymyalgia Rheumatica (Husband) in Autoimmune Diseases

I am happy to find this group and would like to know how to manage my PMR which after several months, a week in the hospital and many doctors. My primary care doctor is the one who diagnosed me. I had so many different diagnoses while in the hospital seeing a number of different doctors with different specialties. When released, I was released with a diagnosis of Inflammatory Arthritis. The first Rheumatologist I went to stated that I needed a hip replacement and needed it right away. This without an examination. I did see another one after a few months of frustration and suffering with pain that would not go away. After being diagnosed, I went on Prednisone starting with 15 mg and gradually reducing the amount until I was at 2-1/2 and after being on that mg for about three weeks. I had been doing well and now find that the pain is starting in my left arm and the muscle above my elbow feels like it has electrical current going through it. I am also experiencing problems with other areas of my body. I will be seeing my doctor in the next few weeks and likely start on Prednisone again. While I know there is danger in taking steroids; as a 79 year old female soon to be 80, I will take my chances on side effects to have relief. I too, noticed almost immediate relief after starting the Prednisone. I would be interested in hearing how others are effected with this awful pain and how they get relief without being on Prednisone.

Tue, Jan 1 11:28am · Idiopathic Pulmonary Fibrosis in Lung Health

Thanks for the reminder. I had ordered the Breathe Easy a while ago when someone mentioned it on this site. I will have him try it.

Tue, Jan 1 11:15am · Idiopathic Pulmonary Fibrosis in Lung Health

He has not had a cold; and, yes and no about the doctor. I told him in the past about the hoarseness being so bad at times, not only myself, but others are having issues understanding him. He will be seeing his doctor this month and I will mention it again. In the past, when I mentioned it, he sent him to the ENT doctor to determine if there were any nodules which may be affecting the hoarseness. It was determined by the ENT that it was his fibrosis. Perhaps, it is time for another XRay.

Dec 31, 2018 · Idiopathic Pulmonary Fibrosis in Lung Health

I am curious about the hoarseness my husband is having. It seems to be getting worse and at times, it is difficult for me to understand him when he speaks. I am wondering if others with this disease are having the same issues; and, if so, what they are doing if anything about it.

Nov 18, 2018 · Muscle and Joint pain in Bones, Joints & Muscles

Thanks for your reply. The referral department for Flagler Hospital in Palm Coast who was getting the appointment for me called me to tell me there was not a Rheumatology Department at Mayo. I must admit I was shocked to hear this and had planned to call them directly just to satisfy my curiosity. I have decided that I will take the prednisone to get some relief from the pain. Thanks again. Fran

Nov 17, 2018 · Muscle and Joint pain in Bones, Joints & Muscles

I was referred to Mayo in Jacksonville by my primary doctor because of several diagnoses with my muscle and joint pain. My primary doctor thinks I have Polymyalgia Rheumatica and apparently there is not a test to confirm it. I was surprised to learn that Mayo in Jacksonville did not have a Rheumatology department to refer me to. They are now checking in Gainesville where there is a teaching hospital I believe. I am not sure about what kind of facility is there. I did try treatment for fibromylgia thinking it may be that and it did not work . I understant with Polymyalgia, prednisone is the only thing that works. I do know when I was on Prednisone, I had less pain. I was only on it for a week at a time. From what I read about the disease, some people have to be on a small dosage for a long period of time, i.e., a year or more.

Nov 2, 2018 · ischemic colitis in Digestive Health

I am so sorry to hear of your issues with you colon. I had the same thing several years ago. After having several episodes of ischemic colitis, my doctor referred me to a surgeon who scheduled me fo surgery. I had several inches of my colon removed and while I hurt like H–L, for several days; I have had very few episodes in fifteen years. I encourage you to consider having the portion of your colon removed that is affected. I know the pain you are having or at least I think I do as I went through a lot of the same pain. God Bless you and I hope you will get the help that you need. Hugs to you.