About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (1)

Mar 31, 2012 · uterine sarcoma in Gynecologic Cancers

I have a different form of uterine cancer- UPSC, uterine papillary serous carcinoma but it is also a rare one so I can understand being your frustration- it took me awhile to understand what the name of it actually was. People kept telling me how treatable endometrial cancer was but what they said didn’t apply to my sort!
I think the first days after diagnosis are the worst- it is such a shock and so scary. But it gets better- you will feel less scared soon and you will feel yourself again, even with cancer, So hang in there, and get all the information you can, but don’t feel like it has to all happen at once and take breaks and just try to relax. I haven’t been a patient at the Mayo clinic but it seems like a great place and I think it is great that you are going there, especially if the form of cancer you have is rare and smaller places may not be familiar with it. . There is a HUGE amount of information in books and on the internet as well that can’t help you- or be overwhelming. I recommend highly a book called ” Cancer, 50 essential things to do” – lots of good information in small bites, encouraging, optimistic and supportive