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Oct 1, 2012 · All of my incisions have healed and I'm looking forward to a in Just Want to Talk

All of my incisions have healed and I’m looking forward to a long productive life. The only issue that remains is that intercourse is difficult due to the way I healed so I will be addressing that issue next time I go to my doctor. I’m assuming that the healed tissue is much more taunt and may need streaching or clipping. Everything else is very good and this also will be resolved. I continue spreading the word to others every chance I get, by now I’ve talked to at least two or three hundred people. Most say they have never heard of it and ask lots of questions.

Jul 5, 2012 · Vulvar cancer in Just Want to Talk

I just finished treatment for vulvar cancer and communicated with Grace but now I can’t find her. If you are reading this Grace I hope you are doing well and will write back. Anyone else that would like mutual support please join in.

Jun 17, 2012 · Vulvar cancer in Gynecologic Cancers

Hello Grace, I love your name. My granddaughters middle name is Grace. By the “grace” of God she became a part of our family through a foreign adoption.
I’m so glad you are feeling a little better and will pray you will continue to regain strength. I met someone a couple of weeks ago that had surgery around May 14-15 who told me that her cancer was the size of a quarter. She was in the doctors office waiting for results. She told me that she kept going to a local doctor telling them something was wrong but nobody listened until it was quite large.. I left my phone number with her son but have not heard anything from her. I continue to hope she will contact me.
During my preventive surgery they opened up the original site (right behind my vagina) and removed more tissue, then made a 5 inch incision on both sides of my groin and removed lymph nodes. I had drains from each of my groin sites for 31/2 weeks. I had problems with the stitches behind my vagina so a visiting nurse and my husband have been putting packing in that wound. The nurse and doctor are very pleased with the speed of healing. My husband is very glad. He has been a good sport about acting as my packing nurse but it is getting old! Keep up the fight.
I look forward to hearing from you. Pat

Jun 16, 2012 · Vulvar cancer in Gynecologic Cancers

I’m doing quite well. They did my original surgery 10 or 12 weeks ago, diagnosed it as stage 2 and said more surgery should be done as a precaution. When the first surgery was done the growth was the size of the end of my little finger but had grown to that size from pimple size in a matter os 3 weeks or so. On May 14 the second surgery was done and they said no further cancer was found. This is my second bought with cancer having had breast cancer 19 years ago. Praise God no chemotherapy or radiation.
I’m sorry you had to undergo chemotherapy, I’ve been told that it is awful! My doctor is Dr. Learner in Walnut Creek, Ca. Who is a young guy that is a gynecologist and oncologist. He is the one that did my last surgery. My understanding is that most nurses and a lot of doctors do not recognize the condition and so often after menopause don’t even emphasize how important pelvic exams are! Most of us have not been trained by the medical profession or anyone else to watch for abnormal conditions or even what is abnormal. My doctor and my friends know now that I carry around my invisible soap box and get on it every time anyone will listen. Look forward to hearing from you again. Pat

Jun 11, 2012 · Vulvar cancer in Gynecologic Cancers

Good morning, I had vulvar cancer surgery a few weeks ago,not as radical as yours but mine was stage 2. Mine was at the back of my vagina and I’m still healing. My thought is do whatever it takes to save your life because Vulvar cancer is wicked. Almost 20 percent of reported cases result in death.

Mar 30, 2012 · I'm 71 and a 19 year survivor of breast cancer. A few in Breast Cancer

I’m 71 and a 19 year survivor of breast cancer. A few years ago i started itching in my vulva area. After going to one doctor, given cream and shown no concern I assumed that the itching and dryness was just because I was getting older.
Fast forward to a few weeks ago and I found a small bump at the back of my vagina. Two weeks ago I had surgery to remove it. On my follow-up apt. (a week ago) my doctor said I had vulvar cancer although he thinks he got it all. I have an appointment with an oncologist that specializes in this type of cancer. I have been told that most likely my lymph nodes in my groin will be removed and checked to see if it is anywhere else. At this point I don’t know if I will have to have further treatment. It is pretty upsetting to learn that this kind of cancer is never talked about in fact I wonder if most women have ever heard of it. In the day and age that is just unacceptable!! @dearannie2000