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Mar 24, 2012 · I have CIDP (Chronic Infammatory Demyelinating Polyneuropathy). in Just Want to Talk

I have CIDP (Chronic Infammatory Demyelinating Polyneuropathy). It is now affecting autonomic nervous system and it’s getting kind of scary. I respond well to IV IgG (intervenous human immunoglobulin) but new insurance company won’t pay for it. How do you fight to get it.

Mar 24, 2012 · autoimmune diagnosing problem in Autoimmune Diseases

I don’t want to discourage anyone not already diagnosed, but I’ve been working on one for nearly 40 years now. Earliest dx was MS; now working on CIDP (Chronic Inflammatory Demyelinating Polyneuropathy). The Demyelinating part indicates a similarity to MS in that it attacks the myelin sheath and the neuropathy part is like with diabetes, but the poly part means many neuropathies. It is an autoimmune disease and my Neurologist says I have it “and something else really big” – like a connective tissue disease (lupus, scleroderma or maybe a mixed syndrome). The scary part is now it is affecting my autonomic nervous system – breathing, blood pressure, heart rate. I responded well to IV IgG or invenous immunoglobulin, but we had to change insurance companies and the new one would not pay for the treatments. My Rheumatologist is trying to help my Internist find a “bulldog” Neurologist that won’t let the insurance company push him around and fight to get the treatments I need. Who out there also has CIDP. I hear it’s pretty rare.