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Mar 13, 2012 · Frustrated and still no diagnosis in Cancer

Hi, I went to Mayo after I was diagnosed with Churg-Strauss Syndrome, it’s an autoimmune disease.I had never heard of it and wanted to make sure I had the correct diagnosis. I didn’t feel well for about 10 years. Even had a dr. tell me it was all in my head. You need to go to Mayo and keep trying to find out what is wrong. Please don’t give up. You just need the right dr. to figure out what is wrong. Mayo was great. My drs. were very knowledgeable,listened to me, and were willing to work with my doctors back home. I was there 3 days. The appts. were scheduled quickly and there was no wasted time. I was impressed with the efficiency. Good luck .

Mar 13, 2012 · Churg-Strauss syndrome in Ear, Nose & Throat (ENT)

Annie, I was diagnosed 4 years ago at 55, but hadn’t felt well for about 10 years. I am beginning to use inhaled steroids more, too. Mine is mainly wearing leg braces for drop foot, hearing aids, sore shoulders, retinal problems caused by needing cataract surgery due to the prednisone then the YAG procedure on the eyes. Just found a new doctor in Santa Barbara who has treated CSS patients before. Am taking 5 mg. of prednisone and cellcept, too. Are you tired a lot? I get some information from the CSS website. This is a lonesome disease, haven’t found anyone in my county with it.

Mar 13, 2012 · autoimmune diagnosing problem in Autoimmune Diseases

Pat A .I had a lot of symptoms off and on for probably 10 years. I was tested for lupus and told I didn’t have it. Had a rash just on my legs (vasculitis). Was in a lot of pain, especially in the arms. Ended up in the hospital and they thought I had leukemia. Finally was diagnosed with Churg-Strauss Syndrome which is an autoimmune disease. Have many health problems but at least I know what I have and am on the proper meds. Maybe check for that, she would have to meet 5 of 6 criteria as there is no definitive test. Good luck, don’t give up!