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Posts (24)

Aug 8, 2018 · burning mouth syndrome very severe in Just Want to Talk

It has been so long since I’ve posted here. I have found something that actually helps and it’s not a RX. When you apply this you have to be prepared that it will burn and will burn more than your mouth does now and use it daily and then start decreasing it until you use it once a week. I use Capsaicin. The burn goes away in about 5 to 7 minutes. It will not blister. I put it on the finger then run water over the finger to remove any of the capsaicin I can see. Then where ever your mouth or tongue is burning run your finger over it. I’m now in my eighth week of using it and it has helped my bms by 98%. Just start with a weak solution and build up. You will be amazed. Capsaicin works by disturbing the pain signals from the nerve to the brain. I wish I knew about this 25 yrs ago. It’ll cost you a few dollars and you don’t need to back it up with any other meds. I hope you get the same result I have.

Apr 24, 2018 · burning mouth syndrome very severe in Just Want to Talk

When my bms is really acting up I suck on sugar free peppermint candy. It masks the burning. Also I brush my teeth, tongue and roof of my mouth 2-3 times or more during the day. It cures nothing but it helps me to manage it better. I hope you find something to help you.

Apr 16, 2018 · burning mouth syndrome very severe in Just Want to Talk

There's more on this site OVID about bms, but you have to be a medical specialist to get on the site. I'm hoping this link won't be broken because I have access to it but I don't know exactly what will happen if a nonmember tries to click on it. If you have a broken link then I will copy and paste for you. I do not post very often at all but I read every post from all who post here on Mayo. I've had bms since the early 90's and have studied so much and read about it compulsively. So far the nearest explanation for bms is this trigeminal nerve neuropathy. I wish dr's and drug companies knew about this study, it's better than most of the dr's opinion a pt. with bms will receive. I do not get excited about "cures" for bms because frankly I believe bms sufferers on this thread know more about it than dr's or dentist. We live it 24 hours a day minus sleeping time. Maybe one day someone famous will have it or someone with "money" will have it and it will nudge a researcher to research it thoroughly. I know I sound cynical but the answers for us (currently) do not rest with dr's. I would love for me to be proved wrong. I just do not believe pain meds or benzos should be used for bms. We should all try an antidepressive because bms can be and definitely is a source for depression! (AND DO WE HAVE A REASON TO BE DEPRESSED.) I will say If helps–try it, just keep your expectations low and your hope high. There will be a treatment for us someday.

Apr 16, 2018 · burning mouth syndrome very severe in Just Want to Talk

Along with bms I have had a period of to much histamine. For a month I was covered in a ugly red itchy rash which sent me to the dermatologist. The one thing I have learned which was mentioned by my primary care dr during this time, is one of the best drugs to take daily for histamine intolerance is over the counter Cimetedine (tagamet) 2 200 mg a day. Just a suggestion for you. The low dose will not hurt you. I buy it otc at Walmart, its pennies a day. Personally I do not believe that histamine and bms are commonalities.

Apr 7, 2018 · burning mouth syndrome very severe in Just Want to Talk

My thoughts are upon your family now. I am so sorry.

Apr 7, 2018 · burning mouth syndrome very severe in Just Want to Talk

I’m so sorry for all your misery. I’ve had panic times from the burning and a few mellowed out times with it as well. Since the early 90’s I have had to deal with BMS. I’ve read research on pubmed, which I can link a little later. This researcher has biopsed BMS suffers’ front 2/3 of their tongue
And has found changes in the BMS epithelial cells among other findings. The longer you have it the more the changes damage you have. She has published a paper after many studies and has come up with the findings of it being a neuropathy of the small nerves near/on the trigeminal nerves. I have trigeminal neuralgia and Tmj and BMS all on the same side, my left. So the one thing in common is the trigeminal nerves. The researcher said this knowledge should be combined with pharmaceutical research to give BMS pt some relief. So according to this published researcher our diagnosis is trigeminal neuropathy or something akin to that.

Jan 24, 2018 · burning mouth syndrome very severe in Just Want to Talk

I know exactly how you feel. I live it everyday. Just look up Botox and see the possible side effects. I know how desperate we all are to find a safe effective treatment for BMS. I’d give my arm to get rid of it. Even a daily dose of a baby aspirin has side effects. I sincerely want the Botox to work, but for what I know I would not try it. I consider it too dangerous. We all have to be our own advocate for what is done to our bodies by physicians. The docs can’t even decide on what causes BMS. I just want all of us to be informed and not to be guinea pigs for every docs theory. Just be safe. Well I’m done preaching but I care for and understand our desperation for a treatment that will help us all.