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Posts (3)

Mar 5, 2012 · Benign reactive lymphoid hyperplasia in Cancer

Hi. It is a beniegn tumor. My sons kidneys ended up shutting down on him. But it is extreme fatigue, weightloss, night sweats, he had stomach pain, nasaous and enlarged lymph nodes all over his body, neck,groin, armpits and stomach. All during his Christmas Break he layed on the coach. He had no appetite. And when he ate, he still felt”empty”( Not sure how to explain that, he had touble explaining it too)It’s treated similar to lymphoma. The only way they can really tell if it’s castleman’s is to do a lymphnode biopsey. I’d maybe talk to another Hematologist/Oncologist.
Hope they can figure out what is wrong. Darci

Mar 1, 2012 · Benign reactive lymphoid hyperplasia in Cancer

Get checked out for Castleman’s Disease. It’s similar to lymphoma, but beniegn. thatis what my son was diagnosed with. He had same symptons!and swollen lymph nodes everywhere. His kidney’s also failed. Please get checked out for this. I would like to know if you have the same thing. This is a very rare disease.

Mar 1, 2012 · Castleman's Disease in Blood Cancers & Disorders

My 16 yr old son was diagnosed with Multicentric Castleman’s Disease. He was found to be HIV negative and also HHV8 negative. Does anyone know the prognosis or have any experience with this disease. I’m told it’s very rare. He is undergoing chemo therapy soon. I’ve looked online and what I’ve read isn;t very comforting. The doctors don’t have a lot of info. either concerning this. Was just wondering if there are any personal experiences. Thank you.