About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (2)

Feb 26, 2012 · Fibrous Dysplasia involving skull bones in Bones, Joints & Muscles

Thanks for replying tonny239.My son hasn’t suffered from any painful effects of fibrous dysplasia yet.Have you ever had a biopsy before your surgeries to comfirm that you had this dysplasia? He went to ER for headaches they did CT Scan an MRI an found the abnormality on his skull but The Childrens Hospital said they hadn’t seen anything like this before when I researched on internet the imaging I viewed looked like the same as what is on his CT an MRI. Do you know of anyway to get the diagnosis with a biopsy? Thanks for your help.

Feb 23, 2012 · Fibrous Dysplasia involving skull bones in Bones, Joints & Muscles

My 17 yr old son was just diagnosed with Fibrous Dysplasia involving the base of his skull .The doctor doesn’t know for sure that this is what he has, so they want to do a biopsy thru my sons nose go in an take a sample of the bone.I would really love to hear from anyone who has faced this or has heard about Fibrous Dysplasia. Also if a biopsy is the best way to diagnosis this disease.Thank You so much for your help.