I’m sorry you are having such pain and rough time.
My research on this has turned up something you may want to google. Look up Pudendal Nerve. You may find it helpful
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I read your post and want you to know that first of all-be assured that no one suffering from pain or illness of any sort would think less of you for expressing yourself and looking for companionship. This is not complaining.
I know because I’ve felt the same way too…don’t want to say anything because i was taught not to complain or be a whiner. We HAVE A GOOD REASon to voice out disappointments, our sadness and grief over loss of our health and abilities we formerly enjoyed.
You are not alone and thats not to say in any way that you have no room for complaint ,..
I hope you can find many here who identify with you and want to befriend you because dual diagnosis even single diagnosis of what you have begs social contact and support as well as friendship.
Please have a restful day-maybe some happy music is in order too:)
I’m really sorry to hear that you’ve been hit with this RA at such a young age. My mom has it but she wasn’t diagnosed until later in life. I have one question for you. Before you got the diagnosis…did your blood tests reveal it or was your test negative and they agreed you had it accordong to your symptoms? Just curious.
Thanks and hope you find a community of peop;e you can relate to who can encourage you as I know how hard it is to be so active with school and sports and then ache to do them but not be able to.
Willwolf…please never apologize for having a feel said moment. We have every right. That’s part of the reason we hurt so bad is that we all try to stay strong evey min of the day. And I love your humor about the remote. I hope the pain pump will help you –I’ve actually thot about it. And the vitamen C is a great idea because I don’t think I get enough from food. Thanks again.
It does seem we have a lot in common as to the challenges we face. My Pt gave me pelvic tilt ex too. I’m having a lot of head stuff going on with this pain and just came back from visiting my doc who’s trying to get me to learn how to allow the pain to come without resisting it. She said when it comes on stronger than usual or anytime you think you can’t handle it-Immed deep breathe, get into the tub w epsom salts and think about how the warm water is flowing around you and softening the tight muscles and how it is allowing them to relax bringing oxygen to the area so that I can face this without fighting it. It was so upset this am that I broke down in front of her. She’s excellent because she understands that all of this isn’t in her head but because of the PTSD they play each other. So after the appt. I felt drained….I walked along the waterfront …boats were coming in and birds were everywhere.Children riding their bikes and people just soaking it all in. That’s what I did before I came home and while I do hurt badly it seems easier to cope than this am before I left..YES, It IS good* to know someone understands. Thank you for your reply.
Hi…I am at home trying to get pain relief and find friends on this site. I am so sorry to hear how difficult your life has become due to the physical emergencies you are having suddenly in your life now. I would’ve immed suspected heart as I just saw a piece oh World News w Diane Sawyer…women and heart attks being pretty much exactly what you describe in your symptoms.Maybe you should see other docs. Have a stress test or just get several diff opinions. Hope to hear if you find out what it is.