Sorry to hear about your condition. I am so glad you are talking about this. I read somewhere that some foods we eat cause odors. Also heard that diabetes sometimes cause odors. Somebody I worked with had problems with sinus and tonsils and had bad breath as a result. This person was totally into hygiene but had horrible breath. It took a lot of doctor visits (dentists also) to find out what was going on. People need to be more compassionate and try to help people find a solution. Eventually and hopefully you will find a reason for this. Take care.