First, what isTG? I am more knowledgeable about esophagectomy problems, reflux, etc. Seldom do we have bile reflux, however.
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Wed, Jan 23 6:22pm · Need Patient's Experience with Mayo Clinic. Is it worth it? in Visiting Mayo Clinic
Yes, it's definitely worth it. I thought I had the best, but Mayo saved my life! Always ask your doctors how many times they have done a procedure, etc. Go where they do the procedure all the time!
We meet quarterly, the third Friday of January, April, July & October at 12:30 in the Vincent Stabile Building, Room 150 or 153. It is right behind Mayo’s parking garrage. Dr. Michael Wallace & Dr. Herb Wolfsen are doing the progrsm in July & in October another gastroenterologist there is presenting a program on the bacteria in our guts! We hear so much about that now – which is the good bactetia – which is bad – are we taking the wrong probiotics, etc. I am anxious to hear her. Dr. Wallace just spent a month working at the largest esophageal cancer center (hospital) in the world in Kenya!
Everyone is welcome – we talk about what works & what doesn’t work for us. We all have eating problems after procedures as well as dumping, etc. The bacteria in our guts have an effect on this, for sure…Newspapers, our cards & brochures all have my phone & email to contact me – I met new patient at Mayo this Monday & have an appointment to meet another next week. Let me know if we can help!
This site has removed my contact email and telephone number for esophageal cancer support. We will meet again at 12:30 October 20th on the Mayo campus in Jacksonville. You and your husband are most welcome to come. We share what works and doesn’t work to help each other. I also did a survey of members asking what they wish they had known prior to a procedure, when they were in the hospital as well as post procedure. It helps just to talk with someone who has been through the same protocol. I do hope your husband feels better.
We have a professional who is going to do a program on that after the first of the year…doesn’t help you now, but there are a lot of smoothie recipes out; drink Kefir, sold in most markets that comes in peach, blueberry, etc. The main thing is to keep his immune system up!
I started this support group ten years ago by listing my name, email & telephone number in newspapers for esophageal cancer support. I have worked with over 400 patients. They contact me from California to Maine, etc. I reposted on my Face Book page yesterday new research that lists the ten most dangerous operations & esophageal was #1 for difficulty.