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Sep 27, 2012 · Myasthenia Gravis and Stiff Person Syndrome in Autoimmune Diseases

Sorry. Has your husband been recently diagnosed. What kind of treatment is he getting. Mine is on mestinon and ivig treatments.

Sep 25, 2012 · Myasthenia Gravis and Stiff Person Syndrome in Autoimmune Diseases

Sorry about your husbands reaction. Glad you were able to help him. Does he have MG?

Sep 25, 2012 · Myasthenia Gravis and Stiff Person Syndrome in Autoimmune Diseases

Yes. Try to find the best one where you live
Talk to your family physician.

Sep 25, 2012 · Myasthenia Gravis and Stiff Person Syndrome in Autoimmune Diseases

NORD has info. About stiff person syndrome. It has a website and is about rare disorders. Hope you are feeling better and I’m sorry about your situation

Feb 19, 2012 · Myasthenia gravis (MG) and Intravenous immune globlin in Brain & Nervous System

My husband is going to have IVIg treatment next week, for three consecitive days. I have read about it on the internet, but don’t know what he will feel like after the treatment each day. The dr. said it would take about 5 hours. Can someone that has had this, write to me and tell me what it is going to be like. The mestinon is working but the dr. thinks this will help him. I think the MG was diagnosed early enough for this to help him.
Also we live in a moderately small city. What are your thoughts on taking him to one of the best treatment centers to treat his disease? Or are people having good outcomes with their local neurologists? His thymus is fine and he is 59 years old. His main symptoms are with speech, eating and swallowing. Also he is still working.
Thanks for any help,
Nancy

Jan 29, 2012 · Myasthenia Gravis and Stiff Person Syndrome in Autoimmune Diseases

My husband has just been diagnosed with mg. He is 59 and in good health besides this. He is having tests performed by a good neurologist where we live. So I don’t know all the results re: his diagnois. His main problem started out with sppech, eating, and then swallowing problems. All of the sudden his speech changed, not slurred, just very different, and anyone would notice it. Guess he had bouts of talking like a person that has had a stroke. It comes and goes. he has been put on the first medicine they give people with this disease.Mestinon. It has helped some with his speech. I am so glad about your recovery. If I find out if his case is mild or severe should I consider Mayo Clinic or another top treatment center for his disease? I am doing a lot of research. He needs to keep working. We do not know how his MG will progress. Any help on anything re: MG would be so helpful to me. You can tell me what I should know. Why you went to the Mayo Clinic, if you would like. Just any information that can help me. Thank you so much for writing Adscheer. You are giving people hope with your story.