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Posts (24)

Sun, Aug 5 9:37am · Severe COPD and Interstitial Lung Disease in Lung Health

I recently had to go to 5 liters on my concentrator and on my portable tanks. Those little tanks just don't last too long on 5 liters. About 1 1/2 hours. I can't afford a newer triple inhaler but the dr added Spiriva to my Symbacort. He said the two will give almost the same affect as the new triple me. They are also referring me to a new rheumatologist to verify my RA. I want to encourage everyone who is new to this to hang in there and don't give up or get discouraged!! Every day you have is worth living and be thankful you aren't in my position. Have a blessed day!

Wed, Jul 25 2:04am · Severe COPD and Interstitial Lung Disease in Lung Health

Thank you. Basically staying inside during this horrendous heat wave. The pulmanory Fellow who was treating me left and I will see the new doctor August 2nd. I feel pretty certain they will tell me that I am not a candidate for transplant due to my many other illnesses. It will be good to have regular appointments again. I will let you know what I learn.

Wed, Jul 25 1:58am · Vitamin D in Lung Health

Thanks to all for their helpful comments!

Wed, Jul 25 1:56am · Vitamin D in Lung Health

Thank you.

Wed, Jul 25 1:55am · Vitamin D in Lung Health

Thanks so much for the comment and website!

Tue, Jul 17 12:53pm · Vitamin D in Lung Health

ignore my last post. I forgot it meant idiopathic.

Tue, Jul 17 12:52pm · Vitamin D in Lung Health

I stands for Interstitial. There fore a known cause that we really don't know much about. I have IPF along with several other interstitial diseases (liver, thyroid,ra) which they believe is caused by the inflamation over 40 yrs of untreated RA. Of course they is no known cure for any of them.

Sun, Jul 8 2:43pm · Severe COPD and Interstitial Lung Disease in Lung Health

Thank you so much for your encouragement, Teresa. I am starting to get pretty discouraged though. Let me explain.I had premature ovarian failure and was fully menopausal at age 35. I believe that alone aged my body 20 years. I was plugging along pretty well until last November when I found myself wandering around in the country, driving alone, and finally by the grace of God made it home. Then the & the hospital stay was something I never want to live through again. I seems like I have aged ten years since that. One time since then I got to where I just couldn't get enough oxygen and turned out I was over loaded with C02. I spent a week in hospital on a bi-pap to get rid of that. Then about a month ago the drs told me my IPF was now worse than my COPD. I am just so afraid they won't approve me for bypass because of all my other problems. Plus I haven't been able to get out and exercise and I've put all that weight back on. I am afraid it won't be too long before I just don't have the energy to keep struggling with this. When I start to feel like that I pull out pics of my great-grandkids. It just seems to get more overwhelming now that I can't get out of the house & run around town, etc. I appreciate your comments and am always open to new advice. Thank you so much!