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Posts (3)

Jan 16, 2012 · Chiari Malformation in Brain & Nervous System

Hi Naureen, I also have been recently diagnosed with Chiari Marlformation. It is extentended 6 mm, and has caused me numerous problems. I was diagnosed at the Mayo Clinic in Jacksonville, but I was not given a lot of information. I have done extensive research myself and have found that there are a myriad of health problems that can be the result of the Chiari. I have sleep apnea, severe pain in my legs when walking, extreme stiffness in my neck, and recently have started having headaches also when doing any activity during the day. The only relief I seem to have is when I lie on my left side on a special pillow I happened upon. I am hoping to find someone who has had experience with the Jacksonville clinic and chiaris. I hope that you can find the answers you need. I know it is a scary thing. It seems that people have had many different responses to the surgery. I just pray and take one day at a time.

Jan 16, 2012 · Chiari Malformation in Brain & Nervous System

That must have been so hard for you. I have a 5 yr. old grandaughter, and I am glad I have the chiari rather than her. But i am still a big baby when it comes to the surgery. But as my symptoms are increasing more every day, i know that surgery is probably inevitable. I am so glad that your son is doing well!

Jan 16, 2012 · Chiari Malformation in Brain & Nervous System

Do you know how much surgery is done at Jacksonville, FL? That was where I was diagnosed last year with a Chiari 1, 6 mm. I am not sure how many surgeries had been done there, but it is the closest hospital to me here in TN.