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Jan 17, 2012 · So the fingers on my right hand are swelling and itch really

So the fingers on my right hand are swelling and itch really badly and I’m wondering what it could be. The strange thing is that only 4 fingers on one hand is swelling.
Does anyone know what could possibly be causing this?
Well I’m more annoyed than sad because I can’t stop scratching my fingers and they hurt when I scratch them.

Jan 12, 2012 · Need help understanding what this means

On result sheets of my allergy scratch test:

For the most recent scratch test I had in March 2010:

There is a:

– line in the space “Negative control” which I would think means that no information can be recorded or not applicable or no reaction

– there is a value of 4+ in the Histamine space which I think means that I reacted high to something


For the allergy scratch test done in October 2009:

There is a:

– positive sign next to the Histamine Control

– VS (I assume “very sensitive”) next to Negative Control

Now I read somewhere that if you react to the “negative control” it means I reacted to just getting the pin prick and the test might not give my a good indication of what I am allergic to because my skin is sensitive.

Is that what it would means?

Was this test not a good indication of my ingestant and inhalant sensitivities even though both tests showed the same things I should potentially stay away from?

When I went to get the earlier test done in 2009, the woman doing the test used one needle and wiped it each time with a cotton swab but she poked and pulled my skin so hard that she drew blood in each section of the test. She told me she needed to make sure that I absorbed it properly. I ended up buying allergy serums from this clinic…but that is a different story.

In the second one in 2010, there was no poking, pulling or blood on my skin, it was painless process. Well, except for the itching and burning on the spots that had allergens.

If I need to get another allergy test done is it possible that I will experience what I had in 2009 and why the inconsistency in the method of determining my allergens?


Thanks for the help!

Jan 3, 2012 · Doctors' sequencing genomes and personalizing patient care

I found this link on the twitter rotator and I believe it’s a good link to check out.

http://m.guardian.co.uk/science/2011/dec/28/mayo-clinic-genomes-personalised-care?cat=science&type=article


There are three options for patients: 1. to have all 23, 000 genomes decoded, 2. the ones needed to understand specific diseases within a patient, or 3. 83 decoded to understand the effect of the drug administered.

I think this is an awesome idea.

It’s really unfair that patients experience side effects from drugs and need to take more drugs to counteract the side effect of the first…and the cycle continues until the patient is taking a pocket full of pills a day.

Now, will this mean that drug commercials will not need to have the warning:” This drug increases chances of developing symptoms that it is initially prescribed to treat and should not be taken if you have a disease in organs that are completely unrelated to the area that is intended for treatment”?

When I was prescribed Advair, Flovent, Singulair and then Symbicort for treatment of my asthma I was afraid to take them because I didn’t want to increase my chances asthma related complications. My lung function was already complicated and I didn’t want to undergo any more stress.

With this project patients will have a clear view as to how they will react and it is highly possible that developing problems in unrelated organs will be minimized if not eliminated.

Dec 31, 2011 · There is no time like to present to make positive changes to your lifestyle in Mental Health

Hello.

Making an appointment with the Mayo Clinic is a great idea ( I didn’t think of it), if living in Canada isn’t a problem then they will be my next stop for medical assistance. I had decided upon waiting until the spring to speak to a different doctor, so why not this place?

Thanks for the idea,

Happy New Year!

Dec 31, 2011 · There is no time like to present to make positive changes to your lifestyle in Mental Health

Hello Shingles.

Thank you for your response. You said that I can be proud and I kept thinking of reasons why that isn’t possible. but I just read your response again and you are telling me that I am doing a good job. I really appreciate that. A new year is on the horizon and one of my resolutions is to be less negative ( I need to start thinking with a mind where nothing is impossible) and know that things will be better as 2011 turns to 2012 and so on.

I even put off looking at responses on this site because I thought there would be none. Meh. Life will be better, I daydream scenarios of getting my Holistic Nutrition Certification through distance-learning so that I don’t have to be bombarded with people, the outside environment and their smells. From learning about food and the environment and their affect on the body, magic will happen and I will be able to go back to University and transfer into a Music program. More magic will happen and I will compose music, write articles for magazines, write books, and design an environment where everything is chemical-free because there will be more people who experience symptoms like mine and they will need a safe haven for their recovery (because I will have found what’s wrong, what to do etc.) Smile* I just thought of “Mrs. Doubtfire”, the scene where she jumps over the banister and shouts: “Help is on the way!” Anywho, I also need my children (when I decide to have them) to grow up without experiencing what I have.

The first thing I need to do though, is to live as stress free as possible and be willing to accept myself unconditionally.

Thank you again, Shingles

Happy 2012!

Dec 23, 2011 · There is no time like to present to make positive changes to your lifestyle

I noticed the connection between my severe symptoms and my environmental sensitivities when I sat in the sports dome in Montreal as I watched the Argos play football against another team.

I couldn’t focus on the game because my skin, lungs, eyes and nose were burning, my muscles felt as though they were draining off my body in long and painfully clumps, there were wavy lines traveling through my body, my head felt as though snakes were crawling inside my skull and at random spots they would bite my brain creating a stabbing pressure that abated to a dull throb.
My eyes were blurring and I got sleepier as I sat in my seat. Throughout the duration of the football game I was having a conversation with the voice in my head that kept telling me that I was stupid for not being able to watch the game just like everyone else. It kept pointing out that: “this person and that person was having a good time, and I was being my normal self and not wanting to enjoy myself”. The voice mocked me by saying: “that if there was something really wrong with me then I should be able to get up and leave just like that person was”. When I didn’t get up, the voice dug in deeper by pointing out that: “There was nothing wrong with me, all I wanted was attention”.

I wanted to get up but I was experiencing conflicting motivations. My body ached so badly that I couldn’t fathom the thought of moving and walking up stairs, but as I sat there I kept feeling worse. And I didn’t know what to do. When I eventually got up, I walked up and out of the dome and into the concession area to notice that there was a distinct difference in the air quality. I was disoriented and the world around me was moving in directions in opposition to the normal senses (sort of like looking into fun-mirrors at a carnival).

It turned out that I sat and listened to the voice for the entire football game because as soon as I got into clearer air my high school band class came out of the dome and it was time to go to our hotel. The next day I was coughing up thick yellow/green/brownish chunks and the center of my chest burned.

The symptoms didn’t start as soon as I sat down they began the moment my high school wind ensemble stepped on to the field and began to play the Canadian and American National Anthems for a crowd of eager sports fans. I noticed a change in my vision, I felt something form over my entire body and my head felt foggy. We started playing and my hearing became patchy and distant and my body progressed from internally vibrating to a heavy sinking feeling. I couldn’t remember the notes to the anthems and at one point I forgot what anthem we were playing so I dropped my left arm and held my flute with my right hand as I slumped to the side in pain and very annoyed at the fact that I couldn’t sit down.

Sadly, this was most likely televised and many people saw some girl obviously pretending to play her instrument. I probably looked as though I didn’t want to be there, but I was in so much pain.

This was in the Spring of 2003 and I was out of school for 2 weeks and I didn’t feel better until 4 weeks after I got back from a week long trip to Montreal.

Over the years I have tried getting help with my situation. I have been told countless times that I just experienced a really bad flu, I had a lung infection, one doctor even told me that what I was experiencing isn’t real because from known literature only specific symptoms were ever reported with tobacco exposure. The idea that I was experiencing these symptoms because of my exposure to cigarette and other tobacco products was not an option. And when I found a doctor who would listen to that idea I was told to abstain from the environment or plug my nose and everything would be okay. Those options don’t help because I can smell the smoke long before I can see the smoker so I have not defense. And even when I wore a mask the scent would penetrate it and would smell sweeter and have a stronger and longer effect on my body.

Over the past two years I have pinned my reactions on commercial chemicals and tobacco products. I had noticed that there were certain foods that I could and couldn’t eat when I was effected and I thought that I had an idea of how to defend and protect myself. It was ( and has been difficult) to find support from people when I mention what my ailments stem from and because of that I spiraled into a deep depressive and choatic mental state. It wasn’t until 3 months ago that The Environmental Clinic in my area diagnosed me with having multiple chemical sensitivity and referred me to a family physician in my area that dealt with patients with this sensitivity.

Now here is the big problem:
For the past 12 months I have been having trouble eating. At first it started with eating anything and experiencing intense pain all over my body and a need to sleep that could not be ignored. I went on an elimination diet monitored by myself (as I was discouraged by doctors and didn’t want to visit another one) and I took out dairy and gluten and sometimes meat. I thought that I had it under control until the foods that I deemed were appropriate from my functioning created intense pain and the need to sleep. For three days I ate peanuts and cookies. I then realized that gluten and dairy were not my problem because I devoured chocolate cookies for breakfast, lunch and dinner and I was symptom free. I was also noticing that the sharp stabbing pain in my heart, that I had been experiencing since I was about 9 years old, occurred more frequently and lasted much longer. I was now experiencing shortness of breath and numbing/tingling pain in my left arm with each episode…(my heart has been monitored for a week, a time, a few times, in high school and the reading showed no abnormalities, I have also been to the hospital and they did a heart reading and that showed normal functioning).

Eight months ago I decided that I was going to eat the diary and gluten free diet and sleep whenever I needed to. I wasn’t working so I had the luxury of sleeping 8-10 hours at night and an 1 hour here and there when I ate a meal.
I finally got an appointment and the Environmental Clinic did their tests and I have a gluten intolerance, I am low in vitamins and a mineral and a few other things are wrong.

Here is the bigger problem:
Two months ago I realized that I couldn’t eat cooked foods, so I cut out meat and quinoa and cooked vegetables from my diet. I was cool with that because I have this notion that my body doesn’t produce the right amount of enzymes for proper digestion and I wanted to go on a raw diet. I started my raw diet and started noticing that I couldn’t eat certain food items without experiencing tightness in my chest, increased phlegm, wheezing, pain and heat all over my skin (stronger on my chest and back). I then realized that these foods cross related to the food items that I am allergic to. I disregarded the fact that I am sensitive to dark leafy greens and peanuts and tree nuts and made kale/spinach smoothies and ate nuts everyday because I needed to put vitamins and protein in my body. I was experiencing mild symptoms and thought I could live with them. Multivitamins make me feel as though my chest is filling up and my throat feels expanded. I don’t understand what that means so I don’t take multivitamins. I stopped eating peanuts and tree nuts when my chest started getting tight, phlegmy and I began wheezing and I stopped drinking smoothies when I needed to sleep and my body started to hurt after I started drinking them.

Here is the biggest problem:
The family physician that I was referred to has not thought to refer me to a dietician and I mentioned from my first visit that all I can eat is peanuts/tree nuts and Kale smoothies. I told her that I have chest tightness and stabbing heart pains. She wondered if I had an EEG, I mentioned the monitoring in high school and I told her that I had a chest x-ray with the Environmental Health Clinic and that they would send my results to her (I haven’t received a call about the x-ray so I assume that everything is fine). After our first visit she told me that because of my age she doesn’t believe that I have anything wrong with my heart or lungs and that my pain is from anxiety. When my blood work was transferred to her she was stunned at my results. She didn’t mention anything about my IgE value being in the high 900s when the maximum level is 300 (I know because the Doctor at the Health Clinic told me and ordered a stool test because she believed I could have an intestinal parasite). I’m sure there are other puzzling readings from my test but I don’t know what they are.

I also have a low white blood cell count. The only test this doctor wants is another CBC, but I am not physically well enough to give anymore blood. The blood I gave for her physical disrupted my ability to eat, I was fatigued and in pain for over two weeks and I craved foods that I shouldn’t eat but ate because they were the only food I wanted and I paid for it each day.

As of this moment the only things I can eat (and honestly I am reacting to it as well but the symptoms are mild) is sprouted buckwheat, avocado and hemp oil. I eat a tablespoon of raw honey to “boost” my immune system but I react to that as well but I don’t know what else to do. I take 5000 IU of liquid vitamin D3 because the doctor mentioned that I might be sensitive to the fillers in vitamins and I am deficient. I purchased “Rejuvenate Cell Therapy” and have been placing that in my water, I don’t feel good each time I take a sip of water, but I need to drink it. I am so fed up with doctors, and people thinking that they know.

I wasn’t sad until I got to this point in the letter because there is something wrong and I can’t get proper help and I believe I am dying and it’s a waiting game for me right now. I don’t go outside unless I need to buy food, because outside smells of car fumes, laundry detergent, shampoos, perfumes, cigarette smoke…

I asked one doctor if I would have to die before I got help and he said yes.

This will help others with similar symptoms to mine and I hope they will get help before it gets really bad.