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Posts (4)

Jan 6, 2016 · Kleine Levin syndrome in About Kids & Teens

Hello all

Don’t give up hope as we still continue to have some of the same issues. You will need to do a lot of research and practice a lot of patience and pray fervently.

It’s not your fault and it’s not his fault. It’s embracing this and not letting it defeat you. Find joy when you can. As I said before I honestly believe all of these disorders are related and not any specific diagnosis is exact. It is getting more manageable with age.

Blessings to you and your family. Don’t give up hope!

Brett Arsta

Nov 30, 2015 · Kleine Levin syndrome in About Kids & Teens

Thank you for writing.

Yes he had received multiple diagnoses depending on the doctors and symptoms at the time.

As with many of these diagnoses for anything neurological and sleep oriented you can get one of many different specific disorders.

Non-24
Circadian rhythm
Idiopathic hypersominia
Seasonal affective
Bi-polar

Our son has been on many different medications and his is a daily struggle.

We were hoping that this would have gotten better with time and hormones. He is now 18 and we as a family have embraced this and gotten a 504 plan through the school which has made everything much better. Other doctors aren’t so sure that it is kleine levin. Many sleep disorders don’t have exact features. Our son has symptoms of many of these but not all of any specific sleep disorder. He resets and goes through a major adjust period about 1 time per month.

Be patient and understanding of all of the sleep disorders.

Dr Rye at Emory university is also doing studies as well.

Until our son 100% embraces the medications and suggested diet and daily routine requirements it won’t get a lot better.

He is on multiple medications for anxiety, depression, bi-polar, stimulants for waking him up nuvigil and trazadone to help him go to sleep. We are hoping to reduce the amount of meds once he embraces the lifestyle requirements.

I hope this helps. Don’t give up. Read up on all of the sleep disorders.

Brett Arsta

Dec 6, 2011 · testosterone in Men's Health

No im a 46 year old male that takes an injection of testosterone weekly through Cenegenics. I also have my regular primary care doctor follow me on their recommendations and treatment. In the beginning when my levels were really low my initial few weeks of treatment i noticed some irritable moments however that subsided once my body became accustomed to me being at regular levels. I noticed increased level of energy, sexual interest in general was increased but nothing crazy.

Dec 6, 2011 · Kleine Levin syndrome in About Kids & Teens

My son has been diagnosed and is undergoing additional testing prior to treatment. It started about 1-2 years ago right about puberty. He is currently 14 years old and continues to get worse.

Any thoughts on treatment of getting the trigger in the brain to help in getting him awake in the mornings?

We have tried multiple things, smelling salts, nicotine patches….