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Posts (8)

Dec 18, 2011 · Fibromyalgia in Chronic Pain

I opted to stay away from Lyrica and went with Topamax for headaches. Love it. My headaches have decreased significantly and side effects are minimal. Also did the 2-day fibro/pain clinic at Mayo. If you haven’t, you should try it. Gave me a new outlook on meds and how to approach my reaction to the pain instead of running to the medicine chest. It’s worth a try.

Dec 14, 2011 · Fibromyalgia in Just Want to Talk

The only thing that has ever worked for the headaches is Topamax. Some docs don’t seem to even know or care what it is. Research it and educate them. As for the fibro pain, I don’t feel the small pain benefit is worth the side effects. If you are part of Mayo, ask your doc to refer you to the Fibromyalgia Pain Clinic. They teach you how to react to the pain. It’s not like the pain is ever going to go away, so we may as well figure out how to stop curling up in a ball when it comes. I’m learning to breathe and move when it comes. Sounds weird and stupid, I know. But it works and takes the edge off. I recommend it. I don’t have the option of quitting my job and moving to somewhere warm and tropical. Flat down in bed makes it worse.

Nov 13, 2011 · Detoxing through nutrition in Healthy Living

A few years ago, my friend told me about the Hallelujah Diet. It is a strict vegan diet. It’s not for everyone, but I believe it has helped me.

Nov 13, 2011 · Fibromyalgia in Just Want to Talk

You have just described my last week. This is truly a crappy disease.

Nov 11, 2011 · Fibromyalgia in Chronic Pain

I sleep in a very warm water bed. It’s the only time I’m not in pain.

Nov 11, 2011 · Fibromyalgia in Chronic Pain

I was diagnosed about three years ago after an autoimmune issue in my eyes. I’m at my wits end. I tried Cymbalta and have to stop due to side effects. The docs wants to try a different med, but honestly, the side effects look terrifying! Any suggestions? Lyrica’s side effect list is pages long! Is anyone taking this?

Nov 11, 2011 · Fibromyalgia in Chronic Pain

I was diagnosed three years ago. My husband and I have a dairy farm, but I couldn’t do the work anymore, so I went back to working in an office. It’s not that much better – I have a heating pad on my back and shoulders almost all of the time or I can’t stand to sit in the chair. Doesn’t seem like there is a happy medium with this stuff!

Nov 11, 2011 · Fibromyalgia in Chronic Pain

I’m in the process of weaning off. This is awful – I understand what you’re going through. My doc doesn’t even seem to acknowledge that this is a problem! I’m starting to think that I’m crazy and this is all in my head! I can’t take Cymbalta because of the side effects: headaches, dizzy, sweating. I thought I’d rather have the pain, but now. . . .