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Posts (10)

Dec 18, 2011 · Fibromyalgia in Chronic Pain

I opted to stay away from Lyrica and went with Topamax for headaches. Love it. My headaches have decreased significantly and side effects are minimal. Also did the 2-day fibro/pain clinic at Mayo. If you haven’t, you should try it. Gave me a new outlook on meds and how to approach my reaction to the pain instead of running to the medicine chest. It’s worth a try.

Dec 14, 2011 · Fibromyalgia in Just Want to Talk

The only thing that has ever worked for the headaches is Topamax. Some docs don’t seem to even know or care what it is. Research it and educate them. As for the fibro pain, I don’t feel the small pain benefit is worth the side effects. If you are part of Mayo, ask your doc to refer you to the Fibromyalgia Pain Clinic. They teach you how to react to the pain. It’s not like the pain is ever going to go away, so we may as well figure out how to stop curling up in a ball when it comes. I’m learning to breathe and move when it comes. Sounds weird and stupid, I know. But it works and takes the edge off. I recommend it. I don’t have the option of quitting my job and moving to somewhere warm and tropical. Flat down in bed makes it worse.

Nov 14, 2011 · Hi Patty, You GSD looks a whole lot like mine. Good to in Just Want to Talk

Hi Patty,

You GSD looks a whole lot like mine. Good to meet you. My dog, Layla, keeps me going – she demands her walks and gets me out of bed whether I like it or not. She’s good for my soul. 🙂

I’m sorry to hear that you’ve been a patient at Mayo for the better part of your life; but you’re lucky to live in a state that has this type of facility.

God bless. @pattys

Nov 13, 2011 · Detoxing through nutrition in Healthy Living

A few years ago, my friend told me about the Hallelujah Diet. It is a strict vegan diet. It’s not for everyone, but I believe it has helped me.

Nov 13, 2011 · Your symptoms sound exactly like mine. I'm so frustrated!! How are you in Just Want to Talk

Your symptoms sound exactly like mine. I’m so frustrated!! How are you coping? @dorothy57

Nov 13, 2011 · Fibromyalgia in Just Want to Talk

You have just described my last week. This is truly a crappy disease.

Nov 11, 2011 · Fibromyalgia in Chronic Pain

I sleep in a very warm water bed. It’s the only time I’m not in pain.

Nov 11, 2011 · Fibromyalgia in Chronic Pain

I was diagnosed about three years ago after an autoimmune issue in my eyes. I’m at my wits end. I tried Cymbalta and have to stop due to side effects. The docs wants to try a different med, but honestly, the side effects look terrifying! Any suggestions? Lyrica’s side effect list is pages long! Is anyone taking this?