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Posts (11)

Oct 18, 2018 · Burning sensations on skin pressure points, i.e. elbows, forearms, hands buttocks, feet. in Just Want to Talk

AFTER reading your post/physical problems, I can no longer complain about anything !! Ever !!

Oct 17, 2018 · Burning sensations on skin pressure points, i.e. elbows, forearms, hands buttocks, feet. in Just Want to Talk

To tell you the truth. I never got the relief from that burning sensation 7 1/2 years after it started in 2011. I've been thru various Docs and medications, the worst being gabapentin. The long term side effects were devastating. I took for about 5 years. It did alleviate symptoms slightly….but not really that well and the side effects were worse than the burning sensations. I don't do or take any medications for it now…….I just live with it and manage it on my own. There are just some things that can never be resolved…..I think that is one of those. People suffer from many unpleasant unidentifiable illnesses around the world and every day…….in comparison to some, mine is not that bad……..so I just go on and live with it.

May 27, 2016 · Restless Leg Syndrome in Sleep Health

Thats interesting that it would work for you. But I highly doubt it. Is
there any scientific medical evidence in any journal to support this ? I
could try this but my problem is not “jitters”. It’s an actual burning
sensation on my pressure points from sitting in one place or pressure on my
elbows etc…only relieved by moving or getting up and mostly worse in the
evenings. It’s hard to believe it would be more effective than say
gabapentin……..but what the heck , anything is possible I suppose. It’s
worth a try….will comment when I have done this.

James G. Bourgeois

May 24, 2016 · Restless Leg Syndrome in Sleep Health

I’m really glad Gaba works for you. Yes it helps me alot especially in the evening while I am watching TV or ready and sitting still. I have to ususaly take 2 , 300 mg tabs to help calm the restless nerves……..doesnt completely go away but …sure does help tolerate it ! It does help with sleep but I still have to take at least a 5 mg ambien to get me to sleep. I also alternate the Ambien with Klonopen to help me sleep . I have to carefully “balance” the intake as side effects of those meds…make one dizzy or balance problems from time to time. Each person has to learn how to regulate their doses as we all respond a bit differenty……….

May 16, 2016 · Restless Leg Syndrome in Sleep Health

I can agree with you completely on this………..gabapentin works for me in 1 to 2 hours after taking a 600 mg dose and I can really feel the difference…..the RLS does not completely dissapear but there is a marked difference and tolerance for the RLS…….of course this is only short acting for a few hours……..but there IS some relief…..which I am thankful for.

May 16, 2016 · Restless Leg Syndrome in Sleep Health

Well, everybody responds differently on any given medication. I have been using them for 4 years 600 – 900 mg/ per day with no adverse effects.

May 16, 2016 · Restless Leg Syndrome in Sleep Health

Hello, I’m interested to understand how hypnotherapy could help RLS ?
Exactly how does this work for you and hypnotherapy in general to address
medical issues ?

May 14, 2016 · Restless Leg Syndrome in Sleep Health

I started having this burning feeling in certain pressure points in my body. Mostly on the elbows, under forearms mostly on my left side ….mostly worse in the late afternoon and evening. It’s usually burning and/or uncomfortable feeling when I am sitting down on couch or chair. the burning sensation like I said on pressure points of the elbows, legs, or butt when sitting even if only 2 mins or so and seems like I can’t remain still…….upon getting up and moving around it relieves the sensation. Went to neurologist 4 years ago……….he confirmed that it was Restless leg syndrome…………there are different types of RLS but the classic symptoms are a feeling of burning, tingling, and a general sense of unable to relax when quietly sitting or even laying down and relief comes when changing position and/or getting up. Diagnosis is by symptoms….there is not a definitive diagnostic test………all bloodwork etc…. is normal . I now take Gabapentin, and Klonopin to calm the “restless” nerves………..there is no cure for this ( my Neurologist says )……..It’s just something you have to learn to live with and take those medications for it……….It is believed there is a link between low iron (which I had) and and RLS . Now I take more iron (but that does not alleivate the symptoms so far . ( even when iron level becomes normal ) . I was diagnosed with low thyroid 5 years ago and started taking the levothyroxine to put my thyroid back to normal which it IS NOW. But even though I still have the RLS……..there is a possiblity that I had LOW thyroid for years before I was diagnosed with it……..hence I think (my theory) the RLS evolved due to the years of LOW thyroid. This is just my thinking on this. No Dr. Told me of that…..anyways I hope maybe this helps others and they can begin to pinpoint their symptoms and get a diagnoses.
I would love to know others with RLS and how they have dealt with it over the years. It seems to be a tricky act to balance the medications with side effects and still manage the RLS……..appreciate any feedback. Thanks Jim B.