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Posts (5)

Jul 28, 2017 · Huntington's Disease in Brain & Nervous System

Hi Teresa, Thank You for your kind words. I will check the web sites that you suggested. I am still very heartbroken, lost and angry at the horrible end stage of my brothers life. I was a devoted sister and his only advocate and spent countless hours with him every day. His illness began 18 yrs before he passed, so it has been a long and sad journey. I did post a few cries for “help” on the mayo web site, when he was alive, but didn’t get any responses. It would have helped greatly to have been able to talk with someone, with this disease, or a caregiver. I surely would be more than happy to offer any help or my experiences with dealing and coping with a loved one with this horrible illness. Again…..Thank You for responding to my post. Dee (Sisterlove)

Jul 27, 2017 · Huntington's Disease in Brain & Nervous System

Hi. I have returned to this sight and although my beloved brother passed away 4/10/15, I am still searching for answers to how he inherited this disease. Surely he was not adopted, and yes a few relatives died before the age of 50 with other illnesses, but who could have carried the Huntingtons gene and it just had not been obvious. Any new information on this disease since May of 2016? Also, if anyone is caring for someone with HD or has it themself, I would love to hear from you. I am still grieving and never got to speak with anyone who has or had this disease. Thanks….sisterlove

May 20, 2016 · Huntington's Disease in Brain & Nervous System

Hi…I was away on vacation and just returned to see all the daily digests from Mayo Clinic. I was surprised because I wrote back in 2011 for help & support for my brother who had Huntington’s Disease. Sadly, he passed away April 10, 2015. I am still very much interested in chatting with anyone who has this dreadful illness. Thank You… Sisterlove

Oct 18, 2011 · Huntington's Disease in Brain & Nervous System

My brother is 68yrs. old suffereing with Huntington Disease. Can barely walk and has lost about 50 lbs, in the last few years. He resides in a nursing home for his care. Anyone experiencing or a loved one with this horrible illness? Also have checked our family tree and no one had this. It is a inherited disease, and yet I can not find anyone in the family that had it. Frustrating & Hearbreaking.

Oct 18, 2011 · Arrhythmia: Does caffeine disrupt normal rhythms? in Heart Rhythm Conditions

In a recent EKG my arrythmia beats are below normal, very slow. Mine are 48 beat per minute and normal is 60-100 beats per minute. Not sure how serious this is? Anyone else have a LOW arrythmia?