Sadly I have made no progress since that post. I thought I was going to go to Mayo and have a biopsy of the left side of my heart to hopefully figure out what might have caused the patchy damage to my heart but it is risky and not all my doctors are in favor of it. There is a belief that I might have something like sarcoidosis which could be keeping me from responding to heart meds. Please I would very much like it if you shared what has worked for you as I am always looking for new possibilities. Thanks.