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Posts (2)

Feb 21, 2012 · Dilated cardiomyopathy diagnosis in Heart & Blood Health

Sadly I have made no progress since that post. I thought I was going to go to Mayo and have a biopsy of the left side of my heart to hopefully figure out what might have caused the patchy damage to my heart but it is risky and not all my doctors are in favor of it. There is a belief that I might have something like sarcoidosis which could be keeping me from responding to heart meds. Please I would very much like it if you shared what has worked for you as I am always looking for new possibilities. Thanks.

Oct 12, 2011 · Dilated cardiomyopathy diagnosis in Heart & Blood Health

Hi, I am a 53 year old (as of today) once active woman who was diagnosed with DCM three months ago. AI have been taking low doses of metropolol, lisinopril, spiranolactone, and fish oil as well as warfarin since I had a stroke two weeks after diagnosis. After three months my ef dropped from 27 to 20. What has anyone else done when the meds don’t seem to work? I don’t have an electrical problem so I am not a candidate for a biventricular pacemaker. Medicine seems to be my only option.