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Oct 21, 2013 · I have Generalized Dystonia and HNPP, Paraxial Vocal Cord disorder, dysphagia advanced, [...] in Brain & Nervous System

I am on the CNN iReports about my disorders, here is the link: http://ireport.cnn.com/docs/DOC-993257 I also have my background on here as well. Trying to find good help is hard.

Oct 21, 2013 · I have Generalized Dystonia and HNPP, Paraxial Vocal Cord disorder, dysphagia advanced, [...] in Brain & Nervous System

Pain on the right top of my head, eye distortions, throat closes all the way.

Oct 21, 2013 · I have Generalized Dystonia and HNPP, Paraxial Vocal Cord disorder, dysphagia advanced, [...] in Brain & Nervous System

I have Generalized Dystonia and HNPP, Paraxial Vocal Cord disorder, dysphagia advanced, BEB, and a spasmed occipital nerve (get mini seizers), Hypoxia from the tight chest muscles, and Pain Dysregulation. All genetic. No one knows what to do. Nor do they work together. So in the meantime I am in limbo.

Oct 12, 2011 · tinnitus in Ear, Nose & Throat (ENT)

I have this, turned out to be part of the blepharospasms plus which affects other parts of the face, ears, mouth, and neck. I get botox shots for this, I seen a lot of ENTs, ear specialist and this is what they recommended. It works, The clicking noise and pain was horrible on top of everything thing else. My neck hurts and pulsates too, my hearing is great I just have a lot of interference, once it stops I am able to hear and sleep, that was irritating at night. Oh I saw a neurologist for the shots.

Oct 12, 2011 · Weight gain with Celiac Disease in About Kids & Teens

once i got the right diet my swelling went down but i do make sure i don’t eat to much because my body will absorb more……..drink more water helped

Oct 11, 2011 · blepharospasms and Blepharitis in Eye Conditions

I have generalized dystonia and blepharospasms plus, I have had the face surgery twice, this second time they put liters in my lids so I can open and close them, less shots too.

Oct 11, 2011 · difficulty in swallowing -toddler at age 19 months-unable to swallow solid food since baby in Digestive Health

I have had swallowing problems all my life, one problem was I have celiacs, the second is blepharospasms plus and generalized dystonia, I had a lot of speech therapy however I finally found one who was able to help me swallow without freaking out because it felt like I was choking and dehydrated from not drinking water, milk and other things were okay if it was thick but the thin stuff was hard, i have to go though retraining again because I am aspirating on water I just think I forgot how to do it, got lazy and drank from the bottles instead of a cup, I carry straws with me, the botox shots help. but for a baby this is hard i remember how hard it was for me.