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Posts (6)

Sep 22, 2011 · SCAD & Heart Disease in Heart & Blood Health

Can’t believe another week has nearly passed.
PFO is for patent foramen ovale, and it is a flap valve hole in the heart. An ASD is a pure hole, but the PFO opens to let unfiltered blood pass only under certain conditions. I think 1/4 of the population have them with no symptoms or problems, but they’ve found that people who have migraine with aura may have risk of stroke if they also have a PFO.

Because I had a history of migraine with aura and then what was diagnosed as a TIA, I had the PFO closed with an Amplantzer device, like a clam shell. The fear is that the TIA is a precursor to a big stroke, so it was a better safe than sorry decision. My overall health is greatly improved after having it repaired, that’s for sure. My migraines are manageable and much fewer, and i’m just a lot more healthy. seems strange that it would be related, but I used to have sinus infections and bronchitis several times a year, and now I don’t. My life is much improved to not be put to bed with migraines several days a month!

Will tell you that this is another one of those areas doctors are divided on. Many think it is quack medicine. A pediatric cardiologist did the PFO closure. He was fantastic, and my internist agreed with doing it, but my cardiologist thought I was nuts.

Hope you’re well.
K

Sep 16, 2011 · SCAD & Heart Disease in Heart & Blood Health

Hi again. Sorry for the delay. I can’t keep my virtual communities straight lately!

Thank you for the link and the article by email. That is extremely interesting stuff. Sounds like you are on the brink of some great developments in the FMD arena too.

When you describe the testing, I remember how my cardiologist carefully listens to my carotids at my visits. I’d never thought to ask why. A few years ago, I had a carotid doppler after a few fainting spells that were attributed to my PFO and eventual TIA. But now it makes me wonder. I should pull that report just to see exactly what it says. I suppose if there were irregularity beyond plaque or blockage they would have said something. Never hurts to ask tho!

Thanks again Jennifer. I am definitely following up on both FMD and the connective tissues question. My focus has been SCAD so intently, I have neglected myself!
K

Sep 9, 2011 · SCAD & Heart Disease in Heart & Blood Health

The FMD link is interesting. I haven’ t been tested yet, but plan to. It surprised me to see on the FMDSA website not a single mention of coronary arteries. A cardiologist I ran into at a cardiology event referred me there, but when I checked the site, nothing.

Has anyone mentioned whether there is a distinction between the types of arteries involved with FMD?

And I agree. It is hard to know where to cast your lot with volunteerism. Individual style, the audience, and organizational mission have to mesh so we each can help the most people.

Sep 8, 2011 · SCAD & Heart Disease in Heart & Blood Health

I think we can say yes we do, now that Mayo is researching us! I’m partly joking, but it is a very good question.

I remember arguing with my insurance carrier about whether I had heart disease. They would say yes, because I was on Plavix and a statin drug. So now that I’ve met women who’ve had repeat SCADs, I firmly feel, yes — what we have is coronary artery disease.

But, when I talk with other women at WomenHeart events, they generally perceive me as “fixed,” since I had bypass and don’t have high cholesterol, blood pressure, etc.

What do you think?

Aug 19, 2011 · Spontaneous Coronary Artery Dissection (SCAD)? in Heart & Blood Health

Sending a HUGE thank you to Dr. Hayes and the Mayo team for believing that SCAD did have research potential. As a pilot study participant, I will be forever grateful.

Aug 13, 2011 · Spontaneous Coronary Artery Dissection (SCAD)? in Heart & Blood Health

Hi Laura!

My SCAD was of the LAD, a postpartum one after the birth of my second child in 2003. I was 38, in great health with no risk factors for HD. I had emergency double bypass. I believe there is a hormonal link, as that’s when I’m regularly bothered by cardio symptoms.