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Wed, Sep 16 7:26pm · I'm a transplant caregiver. Let's connect and share. in Transplants

Hello @ Colleenyoung, Yes rheumatoid arthritis. I will participate in transplant caregiver. Good idea.

Wed, Sep 16 3:33pm · I'm a transplant caregiver. Let's connect and share. in Transplants

Hello JK,

Thank you so much. Sounds like you’re doing well too. Transplants are a trip into the great unknown because we really didn’t know anyone who had one and did not know what to except as far as the whole experience goes.

If anyone has information about rheumatoid arthritis and using Sulfasalazine and then the enzymes go up, let me know. They started the usage three months after the transplant due to severe arthritis pain then stopped the usage last week. We are waiting for the enzyme numbers to go back down. Hopefully that is the cause. A biopsy showed no rejection.

Seems like Tennyson had it right.

“To strive, to seek, and not to yield.”

Take care.

Mon, Sep 14 9:36am · I'm a transplant caregiver. Let's connect and share. in Transplants

Repeat from my Caregiver post.

Hello,

My name is Bill. I’ve been looking for a group to share experiences and concerns with when they arise. My wife and I have been going through the liver transplant process for over a year. Four months ago she received a liver transplant. I was and am happy to do whatever is needed like shopping, cleaning, cooking, hugging, loving and going to appointments. So far things are going well and she is mostly back to her normal independent life. The pandemic does give me some anxiety along with concerns about the transplant since now being on immune suppressants makes her more susceptible to the environment. Like everyone else we cannot do all the things we want to because of the pandemic.

One of my sisters is a retired nurse and is someone to turn to for support.

We are both retired. She works part time from home for a cancer support group helping people living with cancer. I also volunteer for the same group and other non-profits.

One thing I learned is not to worry about things out of my control and to focus on things that I can control.

So that’s it in a nutshell

All the best…

Bill

Sat, Sep 5 2:16pm · Meet fellow Caregivers - Introduce yourself in Caregivers

Thanks and good to hear from you. You have a great September too.

Sat, Sep 5 2:12pm · Meet fellow Caregivers - Introduce yourself in Caregivers

Hi Colleen,

Thanks for the welcome and I look forward to being part of the groups. I don’t think my wife will join at this time.

So, she was diagnosed with PBS Primary Biliary Cirrhosis, some 20 years ago, caused by the immune system attacking her liver. The time came for the transplant and a deceased donor was located. We moved to Rochester MN over four months ago when put on the on call list per advice of the doctor. Also, we didn’t want to travel home then back here four months later because of the pandemic. We’ll be heading home in a few weeks.

Her position at Gildas Club of Kentuckian is IT and I help out where I can in the kitchen, as a photographer, whatever is needed and at events. We are not social workers for client support however Gilda’s Club of Kentuckian has a great staff of professionals, hosting virtual support groups on-line and events. It’s all free. The Club House will open for in person services once it is safe.

Anyone living with cancer and would like to join can go to a local chapter or we take everyone from any state or country. Go to Gilda’s Club Kentuckian. Maybe you could post that information for the cancer group. I hope I’m not breaking any rules posting this information. It’s always something.

On flu shots, yesterday I had the FluAd for 65 and up and she had the normal dose at CVS.

Take care…

@billacaregiver.

Sat, Sep 5 10:42am · Meet fellow Caregivers - Introduce yourself in Caregivers

Hello,

My name is Bill. I’ve been looking for a group to share experiences and concerns with when they arise. My wife and I have been going through the liver transplant process for over a year. Four months ago she received a liver transplant. I was and am happy to do whatever is needed like shopping, cleaning, cooking, hugging, loving and going to appointments. So far things are going well and she is mostly back to her normal independent life. The pandemic does give me some anxiety along with concerns about the transplant since now being on immune suppressants makes her more susceptible to the environment. Like everyone else we cannot do all the things we want to because of the pandemic.

One of my sisters is a retired nurse and is someone to turn to for support.

We are both retired. She works part time from home for a cancer support group helping people living with cancer. I also volunteer for the same group and other non-profits.

One thing I learned is not to worry about things out of my control and to focus on things that I can control.

So that’s it in a nutshell

All the best…

Bill