About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (10)

Tue, Jul 28 10:50pm · Please help reduce my stressing...test results may indicate cancer in Cancer

Hello everyone. Just an update. I actually still haven't received treatment, as my liver shows some lesions as well. The liver MRI is indeterminate, with a 1.5 cm lesion and a few other lesions less than 5mm. No signs of cirrhosis, steatosis or iron deposition. Praying these are all benign, as I understand 20 percent of the population has benign liver lesions. But if they are cancerous, hopefully it's Lymphoma, as I understand it's still treatable.

I recently had a second opinion and to my surprise, the doctor called it Stage IV, even though all of my lymphoma seems to be dedicated in/next to my tibia bone. I thought it had to have spread to another organ, or pop up in the bone marrow (e.g. from hip) to be considered Stage IV. But the doc also said with my Lymphoma, the stage doesn't affect the treatment, so it's really no big deal.

Due to the chance that I may have a higher grade, since my KI-67 (proliferation) is approx. 50%, they recommend a second tibia bone biopsy to try to determine if it is, in fact, a higher grade. Then they would recommend RCHOP, as opposed to BR chemo, both possibly followed by radiation. I was hoping to have radiation only, but they say that with my NHL follicular lymphoma, it's likely it's elsewhere in my body. 🙁

I may even decide to acquire a third opinion. But I want to start treatment ASAP.

Sat, Jun 13 1:42pm · Please help reduce my stressing...test results may indicate cancer in Cancer

Sorry for the delay everybody. Unfortunately, I was, in fact, diagnosed with cancer. However, it's a low-grade b-cell lymphoma (replacing some bone marrow), and associated low-grade follicular lymphoma (in the form of a soft tissue mass next to my tibia bone.) I understand even non-Hodgkins lymphoma is pretty treatable, especially since its low-grade. I'm just glad I now know exactly what it is.

The surgical oncologist that informed me about my biopsy results stated that he doubted surgery would be necessary. I imagine I'll need radiation and possibly chemotherapy. However, if there's an option to only do radiation and possibly have effective results, then perhaps I'll consider that. I've heard chemotherapy has negative consequences, but I suppose radiation does too.

I have my first appointment with my oncolgist on Tuesday, and I'll certainly have a bunch of questions for him. It's been an emotional rollercoaster so far, but I'm improving in this regard a little, as I have an awesome family and friend support team.

Thanks in advance for all of your continued prayers.

Jeremy

Sat, Jun 13 1:23pm · Please help reduce my stressing...test results may indicate cancer in Cancer

I am sorry to hear about your diagnosis and impending surgery. But at least it will certainly be a step to remove and hopefully cure the cancer.

I am finally about to make a post giving an update for my situation.

Take care, and thank you for your kind words and concern. Good luck to you and you'll be in my prayers.

Wed, Jun 3 3:59pm · Please help reduce my stressing...test results may indicate cancer in Cancer

Went to the oncologist yesterday. My Valley Fever result came back right before my appointment, which was negative. After seeing how serious he looked during the appointment, I asked the ortho oncolgist, from his experience, what the odds were that it was cancer. To my surprise, he said 65 percent! 🙁 However, I'm still trying to remain hopeful that it's benign. I have my biopsy tomorrow (talk about quick scheduling!), so I should have tests back by next week.

This is an emotional rollercoaster!

Mon, Jun 1 11:24am · Please help reduce my stressing...test results may indicate cancer in Cancer

Saturday, I did some research on the other condition that the radiologist had mentioned it could be on the report – Coccidioidomycosis (Valley Fever). When I first saw this and did quick research on it, I thought to myself, "I've never had a wound on my right knee/leg, so how can the fungus get inside?". So I pretty much dismissed it. But on Saturday, I came across a huge article online about it, and as I read through most of it, it stated so many symptoms of the disease, which actually sounded like what I may have.

Even though it only happens in a small minority of affected individuals, Coccidioidomycosis can actually disseminate through the blood to other parts of the body, including bones (especially tibia and femur). Also, being African-American (although 50%) makes me up to 10x more likely to have it disseminate. And I live in Arizona, which Valley Fever is endemic. I pull weeds in my yard every month or so, which makes sense how I could've been infected.

I took myself to the ER on Saturday, as recommended by my teledoc appointment. They sent off the blood test for Valley Fever, which should come back today or tomorrow.

I really don't want to find out I'm infected with this, but I'll think I'll take this over a malignancy.

Mon, Jun 1 10:50am · Please help reduce my stressing...test results may indicate cancer in Cancer

Hello. Original symptoms were mainly pain and swelling in my right knee, which was weird, because my other knee (that I had sugery on 20 years ago) was the one that normally gives me issues. During the MRI, they discovered a mass just below my right knee, and replacement of tibial bone marrow, so they needed to get a broader image during the follow-up MRI.

Mon, Jun 1 10:46am · Please help reduce my stressing...test results may indicate cancer in Cancer

Yes, I will be having my wife come with tomorrow and we'll have a whole bunch of questions. Thanks!

Sat, May 30 8:13pm · Please help reduce my stressing...test results may indicate cancer in Cancer

Reading my report again, I see my radiologist says that the T1 hypointense marrow replacement can also be due to Brodie's abscess. I'm thinking it's that, especially since I have a soft tissue component/phlegmon.