Hello everyone. Just an update. I actually still haven't received treatment, as my liver shows some lesions as well. The liver MRI is indeterminate, with a 1.5 cm lesion and a few other lesions less than 5mm. No signs of cirrhosis, steatosis or iron deposition. Praying these are all benign, as I understand 20 percent of the population has benign liver lesions. But if they are cancerous, hopefully it's Lymphoma, as I understand it's still treatable.
I recently had a second opinion and to my surprise, the doctor called it Stage IV, even though all of my lymphoma seems to be dedicated in/next to my tibia bone. I thought it had to have spread to another organ, or pop up in the bone marrow (e.g. from hip) to be considered Stage IV. But the doc also said with my Lymphoma, the stage doesn't affect the treatment, so it's really no big deal.
Due to the chance that I may have a higher grade, since my KI-67 (proliferation) is approx. 50%, they recommend a second tibia bone biopsy to try to determine if it is, in fact, a higher grade. Then they would recommend RCHOP, as opposed to BR chemo, both possibly followed by radiation. I was hoping to have radiation only, but they say that with my NHL follicular lymphoma, it's likely it's elsewhere in my body. 🙁
I may even decide to acquire a third opinion. But I want to start treatment ASAP.