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Posts (12)

Fri, Jul 10 8:50am · Vibra lung in MAC & Bronchiectasis

An Aerobika is fine but does not do what a vest or VibraLung does. National Jewish gave me one years ago. I was only prescribe a vest or VibraLung last year. Maybe aAerobika is sufficient for less serious cases??.

Fri, Jul 3 8:31am · Vibra lung in MAC & Bronchiectasis

I have been using the VibrALung for more than a year. I love it. I’m small, tried vests when I was in the hospital with an exacerbation. Shook my body too hard. As for expense, it was about $3,000, and many meds can cost that over a year or a month, but you own this. Should last a few years. Easy to use, easy to clean. Specialist in Bronch/MAC at UNC said it was as effective as vest.

Mon, May 4 4:52pm · Nebulizing Equipment in MAC & Bronchiectasis

Thanks, NaN. Nice to know I’m not doing something wrong.

Mon, May 4 6:40am · Nebulizing Equipment in MAC & Bronchiectasis

Huge question on time it takes: I use Pari Vios Pro. Neb 4ml of 7% saline twice a day. Each time takes 25 minutes. Gwen Huitt is my doctor at National Jewish. They expect it to take this long. What am I missing? How could the saline be delivered in 2 or 5 minutes?

Thu, Apr 30 8:23am · Nebulizing Equipment in MAC & Bronchiectasis

Forgot to say the sterilizing is after the regular soap and water washing. So if you nebulize twice a day, wash twice, sterilize once. So glad you found the Aventi

Thu, Apr 30 7:04am · Nebulizing Equipment in MAC & Bronchiectasis

On cleaning: talked again to my Pulmonary therapist. A year ago, she told me the easiest way: buy a baby bottle sterilizer. The Phillips Aventi cost about $19. Put 7 oz water in bottom. Lay all mouthpiece components on bottle rack. Close. Microwave 2 minutes. She reminded me I need to do that every day, once a day. As for tubing, just look at it to see if any moisture or droplets inside. If so, plug the compressor back in, run air through tube a couple of minutes, watch the drops fly out. Total cleaning time per day about 4 minutes.

Sat, Apr 25 7:10am · Anyone use Pulmozyme? in MAC & Bronchiectasis

On the Vibralung: I actually like the sounds. I find them musical. So much preferable to the vest.

Fri, Apr 24 6:40am · Anyone use Pulmozyme? in MAC & Bronchiectasis

This med is normally used for cystic fibrosis. It thins mucus, making it easier to cough up and out. My dr prescribed it for me. I will be starting it next week.