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Jul 23, 2011 · Interstitial Cyctitis in Kidney & Bladder

DIAGNOSED IN 2004 WITH IC WAS TREATED POST-OP WITH
TREATMENT CALLED DSMO? WHICH DID HAVE HEPRIN, NOT SURE
OF OTHER INGREDIANTS COST $300 A TREATMENT ONE DAY
MD CAME IN AND SAID IT WAS NOT WORKING DID NOT OFFER ME
ANY ALTERNATIVE EXCEPT TO TAKE PRE-LIEF, FILTER WATER,
AND AN AMINO ACID. HAVE NOT SEEN ANY MD SINCE RE: IC
SOMETIMES TAKE THE MEDS LIKE DITROPAN ALSO HAVE
TYPE TWO DIABETES. THEY ALSO FOUND SQUAMOUS CELL
METAPLASIA WHEN THE BLADDER DISTENTION WAS DONE.
PREHAPS THEY NEED TO DO A CYSTO AND A BLADDER
DISTENTION (HAS TO BE DONE IN SURGERY, SAME DAY). IT
WAS NOT PAINFUL POST-OP AND I WENT HOME SAME DAY.
SEEMS TO BE ONLY WAY THEY CAN LOOK AT ENTIRE BLADDER
WALL. ONE FRIEND HAD PROBLEMS AND COULD NOT GET
AN MD TO DO ANYTHING FOR HER (YES SHE HAD INS,.) SHE
FINALLY GOT A UROLOGIST THAT WAS FEMALE. WHEN SHE
WENT IN THEIR WAS A FORGIEN OBJECT LEFT BY A
PREVIOUS SURGERY THAT SHOULD NOT HAVE BEEN THERE.
SHE WAS IN AGONY FOR OVER A YEAR, PRIOR TO SURGERY.

MY TREATMENTS WERE DONE IN OFFICE. THEY WERE PAINFUL.
ONCE A WEEK FOR ABOUT 5 OR 6 TIMES……THEY SEEMED
TO CAUSE MORE PAIN FOR ME. DO NOT KNOW TIME FRAME
YOU RETAIN TREATMENT OR YOU ABILITY TO CATH YOURSELF
WITHOUT CAUSING MORE IRRITATION. IT IS NOT AN EASY
THING TO DO. YOUR POSITION IS IMPORTANT……LENGTH OF
TIME LEFT IN I ASSUME IS DICTATED BY YOUR DR.
HAVE FOUND EXTERNAL IRRITATION IS PREVELANT.

FIND OUT HOW LONG HE PROPOSES THAT YOU TAKE THESE.
WHAT ALTERNATIVES THERE ARE
FIND AN IC SUPPORT GROUP IF YOU LIVE CLOSE TO ONE
AND THE IC FOUNDATION AS ANOTHER SOURCE OF INFO.

LET ME KNOW HOW IT WORKS OUT GOD BLESS