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Thu, May 21 2:19pm · Bladder cancer: Is a stoma the same as an ostomy? in Ostomy

Yes, the irritated skin can be very sore and lesions are so hard to heal. I have tried many different things and found nothing that really does the job. The less leakage you have the less irritation. The skin gets irritated from the stool and if you have found equipment that lasts you for 3 – 4 days. I say Bravo! I consider myself lucky if I go two. If I get two nights in a row, I don't wait for a leak or a fail, I just go ahead and change it. My motto is "It's easier to change than to clean up a mess". I use Hollister equipment ad I use a barrier ring. Each person must find their best combination.

Thu, May 21 2:02pm · Alternatives to Prednisone? in Polymyalgia Rheumatica (PMR)

Thank you for your reply. It is good to know that you are not experiencing any bad side affects. I will certainly check it out.

Thu, May 21 12:27am · Alternatives to Prednisone? in Polymyalgia Rheumatica (PMR)

I will definitely ask my Dr. about this low dose naltrexone but I will pass on the celery juice/ Have you had ANY side effects to the LDN?

Sun, May 17 2:30pm · Urostomy: How do you care for skin under the wafer? in Ostomy

I would like to help you as I have had serious skin problems my self after my coloscopy last year. Also the stoma is flat/concave so I need to use a barrier ring in order to make a good seal around the stoma. However I am not sure what you are referring to when you say the 'wafer'. Are you talking about what I call the 'flange' to which the bag is attached? I have read the other replies you have had and it is all good advice. Do you have an Ostomy specialist that can look at your particular problem and advise what would work best? Do not ignore the skin problem it will get worse.

Sat, May 16 11:40pm · Bladder cancer: Is a stoma the same as an ostomy? in Ostomy

This was an excellent reply and certainly gave you lots of information and very good advice. I have a colostomy and have had it for a year now. I have had quite a lot of trouble with having the bag stay on me. Mine was an emergency situation and due to the condition of my colon at the time the stoma is far from ideal. (flat and almost concave) Also, my skin is in poor condition all around the area due to my being on Prednisone for 2 years prior to surgery. I have had several visits with the Stoma nurse specialist and my equipment has been changed several times trying to find the right combination of barrier ring, flange and bag. Location is important if you have the luxury of choosing. After the fact it cannot be changed and bending over for any reason can be a real problem. I found that the manufacturer HOLLISTER has an excellent web site which was very informative as well and will send free samples. I fortunately live in Canada and after I was released from hospital, I had home nurses daily to help me for the first few months. They supplied me with the necessary supplies and equipment and my Government pays for it all. Don't be afraid to ask for help, it is out there.

Wed, May 13 1:47pm · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

I was on Pred for two years, dosage up and down several times. I kept trying to lower it but pain was too severe. Last year I ended up in the E.R. with bowel problems. I came out of it with a colostomy followed by several unexpected complications which led to more gastric/bowel surgery. Long/Short I was in hospital for 5 Months. Wounds would not heal and in that 5 months I saw many, many doctors. The one thing they all agreed on was that I must get OFF the Pred. at once. It had suppressed my immune system to the point where the wounds couldn't heal and were the cause of several different infections. I am home now and take zero Pred. Yes, I have a lot of pain but from what I learned the damage that it does to us makes it dangerous for seniors (I am 85) re the COVID problem and any other medical problems that might occur. I hope this first hand account will be of some help to you.

Mon, Mar 23 2:24pm · Living with an ileostomy... in Ostomy

I like your common sense approach to living with an ostomy and the general process of aging. After all, we have little choice so we must 'just get on with it' and do the best we can. I have also made out my Will and made clear what my wishes are for after I die. You are still quite active and I commend you for that. I am the perfect model for being both 'socially distant' and/or in quarantine. I live alone. I don't go out at all unless I have a Dr.'s appointment. I get my necessities delivered twice a week and I have a home care nurse available if I need her. My old body is also ready to go.

Wed, Mar 18 10:21pm · Ostomy: Adapting to life after colostomy, ileostomy or urostomy in Ostomy

Thank you for your thoughtful response. I have been using an adhesive cleaner wipe that my skin tolerates, I then wash this off with soap and water and then Cavilon wipes around the stoma with a dusting off stoma powder. I agree with you that the fibre supplement is not the answer and I will ask my GP for an appointment with a nutritionist. I admire you for your strength and willingness to help others. My life is easy compared to yours. Thanks again.