About

Member has chosen to not make this information public.

Pages (1)

Posts (9)

Tue, Jun 30 9:18pm · High WBC and platelet count in Blood Cancers & Disorders

I just saw my hematologist today. i officially have antithrombin 3 deficiency and if i'm understanding right i also have protein s deficiency *sarcastic huzzah* i will likely be on blood thinners for the rest of my life. *sarcastic huzzah* no word on the wbc though.

Tue, Jun 30 9:16pm · High WBC and platelet count in Blood Cancers & Disorders

I'm on coumadin. and will be for the foreseeable future. i noticed they went down but i can't be sure the blood thinner is the cause.

Tue, May 19 3:28pm · High WBC and platelet count in Blood Cancers & Disorders

well i see my doctor on the 26 and she'll tell me where we go from here. i just heard the people at the hostpital saying i had a blood clotting disorder. she'll tell me for certain. she did say it would dictate how long i'm on blood thinners though.

Mon, May 18 4:33pm · High WBC and platelet count in Blood Cancers & Disorders

New update! my antithrombin III levels are low even after stopping the heparin. so i may have a blood clotting disorder. *sarcastic hurray*
and on the blood thinners my platelets have gone down to normal levels. no idea why my wbc is still high though.

Sun, Apr 5 6:53pm · High WBC and platelet count in Blood Cancers & Disorders

yeah i'm home now recovering. the JAK2 was negative as was the calr and mpl the first hematologist did. the hospital kept me 3 days and they told me my WBC was high all during my stay along with my platelets and they wanted to keep me longer but i told them it's been high since january of last year. so they let me go home. i'm on blood thinners and currently bridging from heparin to enoxaparin to warfarin. giving myself shots is weird but it's necessary so i'm glad needles don't bother me. i have bruises all over my hands and arms from how much blood they kept taking every few hours. but i'm hoping to get some answers and not just more questions my next appointment. my parents think i might have an autoimmune disorder but obviously we don't know that for sure.

Sat, Apr 4 8:01pm · High WBC and platelet count in Blood Cancers & Disorders

I was just in the hospital for PE or blood clots in the lungs. they didn't tell me why the blood clots formed but they did tell me that my leg ultrasound was fine and i think my echocardiogram as fine. i personally think i might be my high counts coming back to bite me in the behind. but i won't know that for sure until i see my hematologist again. hopefully this serves as an incentive to look into my thrombocytosis and not just my leukocytosis.

Tue, Mar 17 6:41pm · High WBC and platelet count in Blood Cancers & Disorders

She decided to put me on an iron supplement and do a JAK2 test to figure out why my blood counts where so off. here's hoping it figures out what is wrong if not she will do a bone marrow biopsy. seems reporting her was just the kick she needed to do her job.

Fri, Mar 13 5:52pm · High WBC and platelet count in Blood Cancers & Disorders

thank you i've been to two hematologist and both of them have brushed me off! they ruled out cancer but still have no idea why my blood count is so high! i'm looking for a different hematologist who will actually listen to me! i'm going to see the second again on monday and if i don't like her attitude. (i reported her to the clinic for her attitude) i'm going to find a doctor that will listen to me. i had my primary care doctor check my wbc count and it was 16. it fluctuates but it's not going down past 13.