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Wed, Sep 9 10:32am · Chronic upper stomach Pain/Nausea going on 4 yrs. ALL TESTS NEGATIVE in Chronic Pain

My grandson had a diagnostic splanchnic nerve block, but the the relief from pain only lasted 2 weeks. He then had a radiofrequency ablation, which also only relieved pain for less than a month. Please look into Mast Cell Activation Syndrome. It was the answer for my grandson.

Sat, Sep 5 11:53am · Chronic upper stomach Pain/Nausea going on 4 yrs. ALL TESTS NEGATIVE in Chronic Pain

Look into Mast Cell Activation Syndrome. A mediator release test MRT will indicate which foods you are "sensitive" to, not allergic to. It is an expensive blood test through Oxford Clinical Laboratory in Palm Beach, Florida. Watch a video done by Ilana Jacqueline on Mast Cell Activation. This was the answer for my grandson who suffered for 2+ years with nausea, vomiting and severe abdominal pain every morning. Had every test in the book, tried many different medications, to no avail. This test found he was sensitive to many different foods and chemicals found in meds and food, One of the main ones was aspartame, the artificial sweetener found in diet beverages and foods. He is diabetic and had been eating/drinking diet stuff since he was a little kid (he is now 20). So, after only 2 days of eliminating aspartame, his stomach issues disappeared. We also eliminated the other ones, like corn, spinach, bananas, oregano, MSG, onions. He is a totally different person now that he feels pretty normal. Mast cells are supposed to be good guys, but sometimes they run amuk. Hope this helps.

Mon, Jun 15 9:42am · Has anyone been diagnosed with Abdominal Wall Pain in Chronic Pain

Look into Mast Cell Activation Syndrome. My grandson went 2+ years with nausea, vomiting, and severe abdominal pain..every day. Last 2 years of high school were a nightmare. He had every test and procedure in the book with no positive results. Doctors pretty much didn't believe him. Through our own research, we found Mast Cell Activation Syndrome, and there is a food sensitivity test called MRT, Mediator Release Test. It is a blood test done by a company in Florida, Oxford Biomedical Technologies. It is expensive, but the results were amazing for my grandson. There were many foods & chemicals to which he is sensitive. One of the main ones was aspartame, the artificial sweetener, which turns into formaldehyde when it warms up inside the body! My grandson, now 20, has been a type I diabetic since he was 10 months old, so in order to limit carbs that raise blood sugar levels, his parents provided him with artificially sweetened, diet food and beverages. There were a few other triggers, like corn, capsaicin, tyramine, MSG, polysorb80, so we are carefully checking ingredients. The amazing turn for his fight against his daily illness routine, was when he stopped drinking diet sodas. Within 2 days, his morning nausea disappeared and the abdominal pain has gone as well. He is a totally different human being now because he is free of pain. You can also check out online a video by Ilana Jacqueline, who addresses this subject. She was very thorough and had many suggestions, one of which was the MRT blood test. Good luck. I hope this will help. We researched over 2 years trying to find something that would provide an answer, asking the doctors for different blood tests and procedures that they had not thought of, but this last one brought my grandson relief.

Sat, Jun 13 12:45pm · Has anyone been diagnosed with Abdominal Wall Pain in Chronic Pain

Could be Mast Cell Activation Syndrome. The only way to find out, however, is a blood test called MRT (mediator release test), which is a food sensitivity test…not a food allergy test. Everyone has hundreds of mast cells which are the good guys, but sometimes they are not. Food sensitivities can trigger all kinds of pain, nausea, etc. I watched a video presented by Ilana Jacqueline. It was amazing. My grandson had been undiagnosed for 2+ years and had every possible test, including colonoscopy, ultrasounds, brain & abdominal MRI's, etc. Nausea, vomiting and severe abdominal pain for the last two years of high school. It was a nightmare. He also has type 1 diabetes since he was 10 months old. He is now 20. His MRT test showed many food & chemical issues, including turkey, corn, peppers, tyramine, capsaicin, polysorb 80, and aspartame. Growing up with diabetes, his parents gave him many artificially sweetened foods and beverages to eliminate high blood sugar levels, which contained aspartame! This product turns into formaldehyde when it warms up in your body! Anyway, as a result of this MRT test, he has discontinued drinking diet sodas and is watching consumption of any of his triggers. After only 2 days being off the diet sodas, his morning nausea, vomiting and abdominal pain ceased to exist! I know this sounds unbelievable, but after watching him suffer every day for over two years, I am a believer. Just hope this helps you. It may not be aspartame sensitivity for you, but this test may provide you with information that will help. It is an expensive test done by a company in Florida, but to us, it was worth it. Corn is in almost everything, so this one is hard to eliminate, but we do the best we can. Good luck. Doctors seem not to know about this test. We had to find it on our own research.

Fri, May 8 2:53pm · No diagnosis chronic pain in Chronic Pain

Have you looked into Mast cell activation syndrome (disease)? After 2 years of no-diagnoses for my grandson's everyday nausea and abdominal pain, (he had every medical procedure in the book) our research found MCAS. We have hundreds of mast cells in our body, which are there to help control reactions to different things. Sometimes, they run amok and cause problems rather than fixing them. We watched a video done by Ilana Jacqueline who suggested a MRT blood test for food sensitivity. My grandson went through food allergy testing, but nothing showed up. This MRT test (pricey) determined he was very sensitive to turkey…of all things! He had turkey/cheese sandwiches every day during his first 2 years of high school! There were several other things (food as well as chemicals) that were causing triggers in his body. Having had type 1 diabetes since he was 10 months old, his parents thoughtfully gave him mostly zero carb foods and beverages. Artificial sweeteners like aspartame are in almost everything he has been consuming all those years. Read about aspartame….it turns into formaldehyde once it warms up in your stomach. How gross is that? Anyway, since he has stopped drinking diet sodas, his daily nausea and pain have stopped. We also watch the other things that he is sensitive to, such as corn. Corn is in many products, so it's pretty difficult. He is also sensitive to polysor80, which is an emulsifier used to make things creamy, such as ice cream, salad dressings, etc. There are a bunch of others that we are trying to eliminate from his diet, but I have to say, that we believe the aspartame has been the culprit. Just a suggestion. Hope you can get some relief. We understand your frustration. We had to do our own research to get the doctors to authorize blood tests and procedures, just to rule out so many other possible diseases.

Sat, Apr 4 2:56pm · Severe upper abdominal pain in 12 year old in Chronic Pain

Mast Cell Activation Syndrome may be what my grandson is experiencing. We sent his blood sample to Florida for an MRT test, which is a food sensitivity test. Pricey, but it came back within 2 days. It showed he was very sensitive to turkey! That was the only high level one. The other moderate ones included some foods and fish that he doesn't really eat, and some chemicals: aspartame, capsaicin,, tyramine, MSG. Being diabetic, he has consumed many artificially sweetened foods and beverages. He has stopped drinking diet sodas, and after only 3 days, his morning nausea and pain have somewhat disappeared! Research on aspartame indicates that once it is consumed, it turns into methanol, which then turns into formaldehyde when it heats up in the body. How terrifying! The capsaicin is from chili peppers, so we are trying to reduce that in his diet. He loves tacos, chili, etc., so this may be more difficult. Corn was also on the moderate sensitivity list, and trying to eliminate all the things that have corn will be hard. Buying organic is probably our best choice. Hope this helps someone with daily abdominal pain and nausea.
With the virus pandemic on right now, doctor appointments have been put on the back burner. No telling when his referral with the immunologist will be acknowledged.

Wed, Mar 11 10:45am · Severe upper abdominal pain in 12 year old in Chronic Pain

Thank you. We have to go through the referral process, which takes forever,and then another wait to get an appointment, IF they decide to take his case. It's been a very frustrating time with the medical professionals. We have a referral to a genetics clinic, but they told me the referral takes at least a month to review, and then (if accepted) scheduling an appointment is a year out! Unbelievable.

Tue, Mar 10 5:28pm · Severe upper abdominal pain in 12 year old in Chronic Pain

My grandson, now 20 years old, has had daily nausea, vomiting and severe abdominal pain for over 2 years. He, too, missed a lot of school and, with the help of his teachers, was able to do enough to graduate from high school. He, too, has had every g.i. test in the book,, as well as MRI's ultrasounds, EEG, colonoscopy, plus many more. Has tried acupuncture , muscle and spine stimulation, nerve pain injections. Has been tested for Addison's disease. He was recently tested for porphyrins. One test revealed a high level, but the second test was insignificant. We are looking into genetic testing and also Mast Cell Activation Disease, which affects every part of the body. We have a referral for an immunologist to check this out. Also just had lab work done on histamine and magnesium levels. No results on that yet. We just have to keep looking ourselves, because primary care doctors don't have a clue and really don't have the time to do research for patients. My grandson also as type ! diabetes since he was 10 months old. I just wish someone would find a correct diagnosis for the pain and nausea.