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6 days ago · Just diagnosed with Chronic NK Cell Leukemia. Please help my daughter in Blood Cancers & Disorders

I am in the search process so havent set up an appointment yet. Thanks.

Wed, Feb 12 7:08am · Just diagnosed with Chronic NK Cell Leukemia. Please help my daughter in Blood Cancers & Disorders

I would also like to add that my misunderstanding that NK-cell leukemia is related to CLL was what led me to post on this forum. Is there another forum that is more related to NK-cell type (i.e T-cell LGL) ?
Since the decease is pretty rare, I am looking for a referral to an oncologist or a practice specializing in NK-cell leukemia. Does anyone have any information on that ? Thanks

Wed, Feb 12 6:04am · Just diagnosed with Chronic NK Cell Leukemia. Please help my daughter in Blood Cancers & Disorders

Hi Justin – thanks for replying. I did some reading on it on the web but didnt understand the medical details of it. Thanks for clarifying that it is related to T-cell leukemia than CLL. I missed that. I think current treatment is the 1st step treatment. it s hard to tell as when it was first found out in the blood test when she went to ED for high fever, shr was referred to a specialist in a big hospital. she only got to see him once. the next to emergency visits resulting in a couple if night stays in the hospital from the flu, she only see some one from his team.

Mon, Feb 10 7:14am · Just diagnosed with Chronic NK Cell Leukemia. Please help my daughter in Blood Cancers & Disorders

Hi Ethan, thank you for your reply and for all the information. I will check it out. My daughter is still in the hospital getting blood, iv and being monitored. I am so worried of the serious infection. Hopefully she will be able to bounce back soon.

Sun, Feb 9 4:47pm · Just diagnosed with Chronic NK Cell Leukemia. Please help my daughter in Blood Cancers & Disorders

Hello – My daughter was just diagnosed with Crhonic NK Cell Leukemia. She was a healthy athlete so the news came as a shock for our family. I have been doing google searches on the decease and found that it is a very rare disorder and found more in Asian populate which we she is. Is this the right forum to get guidance on NK Cell Leukemia. Is NK Cell considered a sub type of CLL. She lives in NC and is currently seeing a specialist and is being treated with an immune suppressant similar to what's used to treat rheumatoid She is currently in a hospital with a flu with an extremely low white blood cells count. Does May clinic have specialist for NK Cell Leukemia ? Who can I reach out to for advice on getting the most effective treatment for her. Please help.