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Dec 8, 2012 · Heart Failure in Heart & Blood Health

There is not one thing that can be done about pulmonary fibrosis. I recall looking into some of the compounds from Biomedical Labs because I know very well how “sniffy” the medical profession gets about alternative medicine. And I remember coming to the conclusion that I want nothing to do with that company’s lung products. In fact there is one case of acute respiratory failure from use of serrapeptase. The fact that something is sold over the counter does not mean that it is safe.

I see that CoQ10 is in some of the products. That is made by the body and it is essential for the functioning of the electron chain in the mitochondria of all our cells; any senior citizen and anybody of any age on statins needs to take plenty of it (I’m on 1000 per day in three installments), and also take acetyl L-carnitine, important in fat metabolism. Doctors probably won’t mention either one to you because they are sold over the counter, but if you mention them they will nod in approval ( or look up the acetyl L-carnitine and then nod in approval as mine did, in fact saying “keep it up” ). Neither of these helps with the lung disease, but a deficiency can surely cause your health a whole lot of trouble. I wish I had an answer. I only know that statins can cause the disease (see the European Medicines Agency on the subject) but don’t quit “cold turkey” because that could kill.

Jun 12, 2012 · Heart Failure in Heart & Blood Health

Statins affect every cell in the body because they interrupt the mevalonate pathway thereby lowering not only cholesterol but a lot of other things besides , all of which are essential to healthy body functioning (I won’t go into details because this is very technical). Doctors are beginning to catch on. When I told my husband’s cardiologist that the risks of statin taking exceed the benefits for seniors, he asked how I knew this; I gave him my most trusted source, statin authority Dr. Beatrice Golomb of the University of California at San Diego, whereupon he immediately went to his computer. He then thanked me and said he had never heard of her. He had already begun to wonder about what “everybody” was saying about statins.

There is also a lively argument over possible dangers of lowering cholesterol as low as the guidelines want it (the committee issuing the latest recommendations consisted of seven drug industry-associated members out of the nine total!). A lot of the negative effects of statins are barely noticeable: for example, occasional muscle cramps or general weakness which we may think only mean we are getting older, temper outbursts, memory problems which we tend to attribute to aging, etc. Use the internet to look up Golomb; she does not talk or write in technical language, but explains in language anybody can understand. Her professional credentials are awesome, by the way!

My 84 year old husband was on Lipitor for many years and didn’t think he had any problems, but when I got him off (it takes weeks of tapering off to come off safely), we both realized after a while that the short temper he used to exhibit had completely disappeared and he no longer was having leg cramps – so he was affected negatively by statins without knowing it. I got pulmonary fibrosis in ten months of statin taking and also peripheral neuropathy but I didn’t know about the lung disease until a few years ago and didn’t know statins were the cause until I obtained my old medical records where “before and after” X-rays told the story (there was no possible cause other than Pravachol). My lung disease can be (rarely) caused by statins. The European Medicines Agency says so. So good luck to you.

Jun 5, 2012 · Heart Failure in Heart & Blood Health

If I am the “Anonymousj” you are referring to: I have a research background, I know scientific methodology, I have spent two years reading every available, worthwhile study of CoQ10, statins, cholesterol, lipid rafts, the electron chain, the mevalonate pathway and much more in the medical field and I will be spending the rest of my life on the same pursuit because a “fact” in medicine one day may turn out to be no such thing a week later: you can’t just read the literature once and figure you are done.

Result of my keeping up-to-date: when I go in with my husband to see his cardiologist the doctor pumps me for info and immediately goes to the references I provide, and ditto for my doctor, who had never heard of acetyl L-carnitine which I am now taking and upon looking it up on the internet said “keep it up” – which I would have done anyway (it helps in the metabolism of fats). And when I see my own medical person at Mayo, we spend quite a bit of time discussing statin research because he has access to research I can’t get at and I have read things that he didn’t know about until I came in. We take a mutual pleasure in sharing information.

I am not a doctor, but I was studying on the doctoral level in Experimental Psychology at the U of Minnesota until I decided I would rather be doing something more interesting than chasing lab rats the rest of my life. Doctors are much too busy to keep current with research on drugs, so I make suggestions which you might follow up with your doctor (who may need to check them out, if he hasn’t heard of this or that which I mention) or on the internet.

And of course nobody should stop statins “cold turkey”: it’s very dangerous. Talk with your doctor about your concerns and about coming off gradually, and if this bothers him, look up the subject of statins on the internet (Dr. Beatrice Golomb’s work is a good place to start: not too technical) and the subject of statin rebound.

If your doctor is unhappy about the idea of quitting a statin, remember: a former FDA director said “People have to take care of their own selves.” He knew the problems! I know a number of instances in which following “doctor’s orders” resulted in a death which was clearly attributable to something the doctor prescribed. So look up every drug taken, don’t let the list of side effects scare you off (the benefits may exceed the risks for any particular person), but if you have a gut feeling against a drug, let your doctor know right away that you want to discuss it with him before proceeding further. Maybe he has a better idea.

Jun 5, 2012 · Heart Failure in Heart & Blood Health

I read your plea about using any information you can get. I did not respond right away because I don’t like trying to use the tiny keys on my SmartPhone. As to using the internet, by the way: all drugs have side effects (and supplements, ditto) so take that into account, and be careful what internet sites you go to. Go to several and compare them.

Jun 5, 2012 · Heart Failure in Heart & Blood Health

And let it be known that “Momentum” is amusing. He needs to know that “pier” is not spelled “peer.” There is a difference.

Apr 19, 2012 · Heart Failure in Heart & Blood Health

I would strongly urge him to take 400 – 1000 mg daily of CoQ10. The body manufactures this but as we get older we don’t get enough for the optimum functioning of the electron chain in the mitochondria of the cells. Cardiologists in Japan and Europe use it for heart failure treatment but not much in this country because they don’t know much about it, and they don’t know much about it because of lack of research (as you know, most research here is funded by drug companies which of course have zero interest in CoQ10 because it is a natural substance which cannot be patented and therefore wouldn’t make much money for them). CoQ is not a cure-all but it absolutely will not interact with your husband’s drugs nor will it harm him in any way whatsoever. And if he is on statins, maybe he should reconsider their use; statins are fantastic but also very dangerous drugs which most cardiologists do not understand and therefore prescribe to people where the risk/benefit ratio is not in the patient’s favor.Statins can kill.

Apr 19, 2012 · Side effects of statins in Heart & Blood Health

You don’t give your age, but there is no reliable research to indicate that statins are helpful for seniors, including those with established artery disease. That said, it is also possible that you are statin intolerant and should stay away from them. But don’t quit “cold turkey.” That can cause statin rebound, which is very dangerous and sometimes fatal for people who have already had a coronary event. By the way, there is active debate among scientists as to whether or not statins should ever be prescribed, given their interference with the mevalonate pathway, except for familial hypercholesterolemia and certain other very specific situations. Many cardiologists are hung up on the statin hype and they have not had the time (or the research background which I have) to find out what statins actually are and do. Statins are amazing and useful drugs, but they are not candy.There are reports to the FDA of thousands of deaths over the years from statins. And do not fret over your cholesterol level;take up to 3600 mg of fish oil daily and 400-1200mg daiy of CoQ10 daily and enjoy the rest of your life. Remember, doctors don’t know everything and this is your health, not theirs, that is at issue here. Good luck!