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Posts (11)

Sat, Aug 1 11:06am · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

My husband was diagnosed with pancreatic cancer in 2017 after thinking he was having gallbladder issues. We immediately called Mayo Rochester for a second opinion. He had chemo, radiation and a Whipple. There is hope for you! My husband is still here and doing well. He has had a couple of set backs but he is here and enjoying life!!! Prayers to you!!!

Tue, Jul 21 12:24pm · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

It does not. It needs to be replaced every 3 months.

Mon, Jul 20 8:49pm · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

My husbands experience with the CA 19-9 has been similar to yours. It goes up and them comes back down. If his stent that he has in his bile duct gets sludge in blocked that will elevate the number. If his bilirubin goes up that usually means the CA 19-9 goes up as well. When they replace the stent it usually goes up a bit just from the Doctor going in to replace the stent.

Thu, Jul 16 6:59am · CA 19-9 and pancreatic cancer: What do the numbers mean? in Pancreatic Cancer

My husband was diagnosed in Nov 2017. He start chemo in Dec 2017. He had 8 months of chemo and 6 weeks of radiation and a chemo pump. Our surgeon at Mayo Rochester wanted the CA 10-9 at 200 or lower before he would perform the Whipple. In Nov 2018 the Whipple was done at mayo in Rochester. It was a success. He handle the chemo and radiation very well. Yes there were times that he felt yucky but knew he had to keep on pushing!!! And he did. His CA19-9 continually went down throughout treatment. Maybe not as fast as we would have liked but it did go down. That number is not the only piece of the puzzle that we need to look at but in his case it was a very important piece. His tumor did shrink also with the chemo/radiation. He had 9 months after the surgery with no chemo/radiation and no signs of any new cancer. That was until Feb 2019 when on a chest X-ray they found nodules on his lungs. Further imaging and a biopsy confirmed it was the same cell make up as the pancreatic cancer. So now it as metastized to his lungs. So more chemo. It has been a journey but with many prayers and support and the great Doctors and Mayo Rochester things are looking up.

Tue, Mar 3 9:58pm · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

I agree 100%. My husband would not be here today if it wasn’t for our second opinion at Mayo in Rochester!!

Mon, Feb 24 9:13pm · CA 19-9 and pancreatic cancer: What do the numbers mean? in Pancreatic Cancer

Thanks for asking. He has been getting chemo every other week for the last 5 months. We will be back at Mayo Clinic at the beginning of March to see how things responded. Hopefully a chemo holiday will be coming soon!

Sat, Feb 8 10:11am · How to evaluate a cancer doctor? in Cancer

Your story is very much like my husbands story. He would not be here today if it wasn’t for a second opinion at Mayo Clinic and the great surgical work of Dr. Michael Kendrick. He saved my husbands life. I will forever be grateful to him!!! Thank you just isn’t enough! Glad to hear you are doing great!!!