I am also sorry you have had to go through all those things! I, too, have had a somewhat similar experience over the last 10 years. I was diagnosed with Fibromyalgia in 1998 by a very good Rheumatologist and have been treated for that til present and ongoing. Recently though, I saw another very good Rheumatologist and was diagnosed with Sjogren’s Syndrome. He said I did not have SLE, but the chronic dry eyes (they feel like sand in my eyes) and chronic dry mouth and many other symptomes were indicative of Sjogren’s. He put me on Plaquinil (generic form) and after about 4 months I feel some better, but not where I want to be. I have both Central and Chronic Obstructive Sleep Apnea and that causes me more problems than anything. I have had several sleep studies and I cannot sleep without a BiPAP machine without paying consequences. I hope you find out what is wrong, I know you are tired, but keep up hope and never give up, that is what keeps us going. I too have the chroinic fatigue and it is worse than all the other. Just keep doing what your heart and body tells you and get to the right doctor by process of elimenation! God bless you in your quest ot find the answers! And, oh, also, with Sjogren’s you see a Rheumatologist, and have to keep regular appointments with a dentist and opthamologist for treatment of the dry eye and tooth decay. I hope some of this may have answered your questions or given you encouragment.