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Posts (18)

Tue, Jul 21 4:06pm · Looking for direction in treating Irritable bowel syndrome in Digestive Health

She's exploring, with a Holistic practitioner, possible lower bowel issues. With the wuhan mess testing through the mail is a challenge. I'm pushing major university medical facilities but she's the one in pain, unfortunately. Thanks

Mon, Jul 20 9:04pm · Occipital Neuralgia in Brain & Nervous System

ON came crashing down on my wife second week of June, so much pain I thought she was going to faint. Walk in clinics, family doc, then ER for a Cat Scan, refused to give her a nerve block in the ER (new world of medicine I guess) waited two weeks to get a block which didn't help right away. Doing physical therapy, SLOWLY her intense pain subsided. We're hoping she's turned the corner finally, getting a second block this week. This is a terrible condition.

Mon, Jul 20 8:44pm · Occipital Neuralgia in Brain & Nervous System

Is this the correct forum to discuss ON?

Mon, Jul 20 7:39pm · Weaning off zolpidem (Ambien) in Sleep Health

Medical marijuana. If you live in a State which allows it, make an appt with a MM MD for an authorization to apply for a license. It took a year to perfect the right dosage that allows me to sleep thru the night and not feel a "hang over" the following day. You can then purchase from a legal dispensary where you will find "heads" but you will also see people with serious problems seeking relief. A short time ago I saw a young person who had sustained terrible burns to their face… my heart goes out to them. It is simply a miracle for me waking up after 7hrs of sleep and actually feeling great! Many years spent feeling fatigued which colored my whole day.

Mon, Jul 20 7:19pm · High Levels Of B12 in Blood Cancers & Disorders

The ET and artery disease prompted me to plant based, allegedly PB will reduce plaque. After stepping up exercise, lost 15lbs, doing all the right things, my blood pressure suddenly spiked and resulted in me doubling my BP meds, very disappointing. My wife lost 30lbs BTW. The PB anthem is the movie "The Game Changers" and also "Spoon Over Fork" detailing "studies" claiming no loss of protein levels. The transition was fairly easy when you are motivated by health issues, there are tons of recipes on the net. It takes a lot of time shopping and preparing, any PB restaurants were probably eliminated by the Wuhan Virus? We have found several recipes we like on the "Taste of Home" magazine website under PB recipes.

I am interested in the B12 issue, my next appt is a month away, I'm going to request another B and see if I can get a cholesterol check. I see Hematologists in two states (snowbirds) which confuses things. Cheers!

Sun, Jul 19 10:54pm · Weaning off zolpidem (Ambien) in Sleep Health

I've posted this on another sleep thread here.. typical insomnia for 20 yrs, 72 now. Used Ambien, switched by MD to Ativan, terrible stuff, withdrawal is dangerous, switched to Belsomra which seriously affected my cognitive functioning, Got license and for two yrs been using a tincture of THC/CBD drops under tongue with success. Don't get the typical high feeling, no Cheech & Chong foolishness, just gets me into a deeper sleep state. It's a natural product, non habit forming.

Sat, Jul 18 12:50pm · High Levels Of B12 in Blood Cancers & Disorders

I have essential thrombocythemia, a liver mutation resulting in overproduction of platelets. My B is off the chart, my hematologist is unconcerned saying B is stored in the body for long periods. I have switched to plant based and stopped daily multiple vitamins in the last 6 months, haven't had that tested lately.

Thu, Jul 16 10:21pm · Essential thrombocythemia in Blood Cancers & Disorders

In response to earlier posts I was asked to post bone marrow biopsy results, hope this is not too long. Diagnosed ET 11/19, platelets exceeded one million briefly, daily hydroxyurea knocked that down to 760, has slowly risen to 900. My Hematologist: this is basic ET, won't be the cause of my demise and probably won't transition to other forms. Other than minor fatigue I feel fine. In the last six months I have switched to a plant based diet, increased daily exercise, and struggled to lose 20 lbs. For my efforts my blood pressure suddenly increased resulting in doubling my ace inhibitor and a .325 aspirin nightly. Not quite the results I was looking for! Word of advice: if you're getting a biopsy get anesthesia! A friend did it with just numbing and had a week of pain. The procedure is on utube.

BONE MARROW CORE BIOPSY, CLOT SECTION AND ASPIRATE SMEARS:
— HYPERCELLULAR BONE MARROW WITH MEGAKARYOCYTIC HYPERPLASIA,
CONSISTENT WITH TREATED ESSENTIAL THROMBOCYTHEMIA
— BLASTS: NOT INCREASED.
— NO OVERT EVIDENCE OF FIBROSIS

PERIPHERAL BLOOD:
— THROMBOCYTOSIS

Comments:
Mild megaloblastic changes seen on myeloid precursors and neutrophils,
likely due to the drug effect of hydroxyurea. Cytogenetic and molecular
studies are pending.

CLINICAL HISTORY:
This is a 72y.o. male with essential thrombocytosis (diagnosed in
10/2019) with CALR mutation on hydroxyurea and aspirin.

INTERPRETATION:
BONE MARROW CORE BIOPSY/ ASPIRATE CLOT SECTION:
Adequacy: Adequate for evaluation.
C
ellularity: 40-50%
Erythropoiesis: Adequate
Granulopoiesis: Mildly increased.
Thrombopoiesis: Megakaryocytes are increased and many of them are
mostly large with clustering focally.
Trabeculae: Normal
Other Findings: There is no overt evidence of fibrosis.

BONE MARROW ASPIRATION (GIEMSA STAIN):
Adequacy: Adequate for evaluation.
Blasts: 2%
M:E ratio: 3.2:1
Erythropoiesis: There is no dysplasia.
Granulopoiesis: Mildly increased with some megaloblastic changes.
Thrombopoiesis: Megakaryocytes are increased, many of them are large
in size.
Plasma Cells: Not increased.
Lymphocytes: Small and mature.

IRON STAINS ON CLOT SECTION AND ASPIRATE SMEAR:
Storage iron: Adequate
Sideroblastic iron: Present
Ringed sideroblasts: Absent

PERIPHERAL BLOOD (GIEMSA STAIN):
White Blood Cells: Neutrophils show occasional hypersegmentation.
Lymphocytes are morphologically unremarkable.
Red Blood Cells: Slightly decreased and slightly macrocytic with
minimal aniso
cytosis. There is no overt polychromasia. No significant
schistocytes or spherocytes identified.
Platelets: Markedly increased.