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Posts (3)

Wed, Jan 15 7:14am · Parsonage turner syndrome * in Brain & Nervous System

Hello @adriennes, My symptoms are same as yours and I do my exercises. Started CBD cream this week. As I see you wrote this 2 years ago do you have any improvement? Sandy

Wed, Jan 15 6:55am · Parsonage turner syndrome * in Brain & Nervous System

Hello Lisa, Thanks for finding the right place for me. I am very interested in connecting with others. I was diagnosed in May of 2019 with PTS. It was the result of a broken wrist, either the surgery but most likely the nerve block. I am a 68 year old woman who has never had any serious illness or surgery. I worked out, was very healthy and full of energy and joy. This has changed my life significantly. I have it on both arms. My right hand is severely affected. Thumb and forefinger is totally numb. Top digits of both thumb and forefinger will not bend. Always feels pins and needles at best.

I have started using CBD lotion this week. Will see if this helps. Gabbepentin helped in the beginning when I had more pain…but no help to pins and needles, so I stopped. I exercise my arms and hands almost daily. I do yoga once a week. I distract myself through activity, such as working on my art gallery/shop and my photography. BTW: I can no longer use my camera or read which I used to love to do.

I have other questions for the group but for now, I hope this explains a bit more about me and my managing and coping

Tue, Jan 14 11:27pm · Parsonage turner syndrome * in Brain & Nervous System

Would love to connect with people who are suffering from Parsonage Turner Syndrome. Would like to hear how you are coping and what progress one can expect.