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Caregivers, Chronic pain, Hormonal and metabolic disorders, Neurology (brain and nervous system), Other

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Fri, Mar 13 9:03am · Your experiences with IBS in Digestive Health

I have a disease called Adrenaleukodystrophy and was also diagnosed with IBS.I feel like a prisoner in my home,never knowing when I will have a accident. I am embarresed when I have no control. I live on Bentyl and Imodium. And stress compounds everything. If anyone has a solution. I hope you get well.

Sat, Jan 25 7:13am · Irritable Bowel Syndrome (IBS): How do you manage it? in Digestive Health

Using a heating pad has helped me with the cramps until the pain was relieved.Also with the medication I take,I don't know how long this will continue to work for. I try to only eat certain foods,that doesn't always help.

Mon, Jan 20 4:19pm · Irritable Bowel Syndrome (IBS): How do you manage it? in Digestive Health

I am so aware of what you going through.I live on Bentyl 10mg and Imodium. I watch what I eat that's not always the answer. I also have a heating pad at night.I wished I had something for positive. I Empathize with you..

Sat, Jan 11 8:44pm · undiagnosed movement disorder in Brain & Nervous System

I would love to hear from you after your next iron iv. I should of thought this was a reason I was always tired.My Dr said it was part of my disease.My Dr put me on 50,000 I of Vit D. I would love to hear if the iron you are getting helps.I pray this is the answer for you. Will keep you in my prayers.

Sat, Jan 11 10:34am · undiagnosed movement disorder in Brain & Nervous System

I have problems with Spasticity in my legs. I cannot walk without a walker. I have fallen many times. My Dr has me on Hydrocortisone 15 mg 2×a day. I have not heard of . My Dr didn't recommend Iron IV. Is this helping you? I pray that it continues for you. What did they diagnose you with? Stay strong. God Bless.

Thu, Jan 9 1:15pm · Irritable Bowel Syndrome (IBS): How do you manage it? in Digestive Health

I understand what you are going through. My symptoms are the same. Stress is a big factor. I cannot control my stress it surrounds me with my family having no regard. I love on Bentyl and Imodium and a heating pad as well. I have exhausted all Aves.I am ready to go back to Kennedy Kreiger where my son was diagnosed. If you have any information please share it with me. I feel for you.Be well

Wed, Jan 8 8:45pm · Anyone out there heard of Adrenoleukodystrophy (ALD)? in Brain & Nervous System

Thank you so much John for enlightening me and my son. I will certainly pass it on to him.Keep me abreast of Adrenaleukodystrophy and Possible tests.

Wed, Jan 8 6:12pm · Anyone out there heard of Adrenoleukodystrophy (ALD)? in Brain & Nervous System

Thank you so much for the information ,far more than my neurologist has given me. I had 2 MRI s and didnt see much change. I also had a vlcfa blood test and he said they were not all high. I have been going to PT 3 x a week.I am also taking hydrocortisone 10 mg 2 x a day. I keep asking him about new treatments and he said there were none. I have a 40 yr old son that is affected with this disease. He has the E D so he is not able to get a erection. He also has IBS. I pray that he is not affected with any other Symptons. I advise him to go have MRI s but his insurance co doesn't pay for all of it. Certainly if you can direct me in another area to get more answers. I will be so grateful.