I have been on lyrica, gabapendin, colonipen. None help my burning tongue and mouth. I've had my vitamin levels checked and allergy tests. There has to be some cause we all have in common!
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I printed the information from Mayo Clinic and took it with me to my appts. Sometimes if they can't see a problem, they can't treat a problem. Try to get your doctor to try Xanax 0.5 mg. It has helped some but not all the time. Right now I'm on fire! I'm 71 and have had this for 9 yrs.
Good luck to you and God Bless. I hope you will find relief.
Reply to jshdma
I've never noticed cold air making bam worse. Mine is always worse at night and better in the morning. I take medications for fibromyalgia hoping that would help but does not. Have you tried Xanax. If not, do. A little relief at times. Hope you feel better soon.
The first thing I tried for burning mouth was see my dentist. He had two other patients with the same symptoms so he was aware of it. One patient, it went away on it's own. The other continued to have it.
Second, I went to my primary doctor and he wasn't aware it exists. I printed everything available on the Mayo website before seeing him. He was very interested and agreed it sounded exactly like what I was experiencing.
Third, I went to my neurologist. He believes it is a nerve disorder. Possibly related to a neck surgery I had for a ruptured disc that caused extreme pain in my neck and down my arm. I have fibromyalgia and nerve pain pretty much everywhere. I've had three back surgeries and have legs and feet numbness and burning ever since. The neurologist did not have any treatment to suggest.
I happened onto Xanax by chance. I was leaving for a trip to Australia and my mother was in poor health at the time so I was distressed about leaving her. My husband asked our doctor if he could suggest something so I could relax and enjoy this once in a lifetime trip. He gave me the very low dose of Xanax 0.5 mg. And I realized I felt less burning when on it so he has continued it in spite of my insurance hassling me everytime I get it filled.
I find stress makes the pain worse. Hot or spicy foods, some red wines.
Lately, it has been more severe even with Xanax. Not sure why except maybe stress.
I hope this will explain my journey and hopefully help someone else.
I have suffered from this condition for 9 years. I take 0.5 mg of Xanax, which help some. It also causes dry mouth and sometimes trouble speaking. I researched about it when I first got it. I can never find good information and I wondered if anyone has any recent information that might help. I wanted to get in a study but apparently not enough people have it to warrant a study. Please help if you can!
I have been put on gabapentine, because I couldn't afford Lyrica. It just doesn't work as well as Lyrica. I checked on Lyrics generic with my doctor when it came out in the summer. It is also very expensive through my insurance. I'm a senior. Does anyone know how to get Lyrics generic affordable??