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Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

Thanks for sharing Jim, unfortunately my symptoms are getting increasingly more serious and difficult for me to maintain any kind of normal daily life. My head hurts from sun up to sun down every day I have pain in my neck & shoulder also as well as vision problems, memory loss, concentration problem, mood swings, irritability x10, etc… and I have unfortunately been medicated to the max n the past so much the narcs stopped working, so I quit ALL pain meds, :(now i wis I was a junkie again) the pain is getting to be out of control!! Sometimes has to be done!!

Dec 13, 2019 · Ostomy: Adapting to life after colostomy, ileostomy or urostomy in Ostomy

Hello, my name is Dave, I have had a colostomy since 2000, I am a quadriplegic and it was one of the best things that I could have ever done. I am no longer tied to the toilet every 2-3 days, it has given me a new sense of freedom. Now with your concerns about diarrhea, yes continue to add rice and cheese to your diet, this is a very good natural way of controlling your consistency! Pepto Bismo, Maylox, or Imodium will also be beneficial to slow and or stop the looseness of your stool. Just a suggestion! Dave

Dec 13, 2019 · Arachnoid Cyst in Spine Health

Thank you so very much for your reply Dave, I appreciate it very very much and yes I am in excruciating pain on a daily/hourly basis and I am trying to reach out to get help with my situation and you have at least given me an avenue to explore. I was in Rochester, MN for a surgical consult, referred by my pain specialist from St. Paul's Regions hospital, but I missed my appointment because I ended up in the ER @ St. Mary's hospital in Rochester MN, I was admitted and was afforded the opportunity to see one of the Dr.s from neurosurgery (not the one I was scheduled to see) he is not convinced that my pain is from the arachnoid cyst on my spinal cord. (I disagree!!) he wants me to come back in January for an occipital nerve block and trigger point injections. Blah! I have already had both of these procedures numerous times before, they have NOT worked. Plus in January it is very cold here in Minnesota and I live 2 1/2 hours north of Rochester and I DON'T travel well because of the pain associated with bumpy Minnesota winter roads!
So I am going to look up this doctor that you have recommended and see if I can see him instead of this other surgeon that was not confident about trying to do surgery and fenistrate the cyst, which I feel would be the best . But I will not do surgery at all they are going to make me worse than I am, unfortunately I am a quadriplegic I have been for 30 years. The Dr.s in St. Paul they are saying that if they do surgery that I will not be able to swallow again forever!! I can't do that!!

Dec 13, 2019 · Arachnoid Cyst in Spine Health

Please advise on what university you were seen at that did surgery? Please

Dec 9, 2019 · Arachnoid Cyst in Spine Health

Where did you get surgical support? I will most likely be needing surgery so please recommend a surgeon for me , an where in the country is it located ? Thank you, Dave